Beyond Consent in Research


Authors
Joseph Fins
Cornell University
Walter Glannon
University of Calgary
Abstract
Vulnerability is an important criterion to assess the ethical justification of the inclusion of participants in research trials. Currently, vulnerability is often understood as an attribute inherent to a participant by nature of a diagnosed condition. Accordingly, a common ethical concern relates to the participant’s decisionmaking capacity and ability to provide free and informed consent. We propose an expanded view of vulnerability that moves beyond a focus on consent and the intrinsic attributes of participants. We offer specific suggestions for how relational aspects and the dynamic features of vulnerability could be more fully captured in current discussions and research practices
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DOI 10.1017/s0963180113000984
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References found in this work BETA

Vulnerable Populations in Research: The Case of the Seriously Ill.Philip J. Nickel - 2006 - Theoretical Medicine and Bioethics 27 (3):245-264.
Vulnerable Brains: Research Ethics and Neurosurgical Patients.Paul J. Ford - 2009 - Journal of Law, Medicine and Ethics 37 (1):73-82.

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