Theoretical Medicine and Bioethics 24 (5):381-393 (2003)

In his paper, “The Relevance of Rawls’ Principle of Justice for Research on Cognitively Impaired Patients” (Theoretical Medicine and Bioethics 23 (2002):45–53), Giovanni Maio has developed a thought-provoking argument for the permissibility of non-therapeutic research on cognitively impaired patients. Maio argues that his conclusion follows from the acceptance of John Rawls’s principles of justice, specifically, Rawls’s “liberty principle” Maio has misinterpreted Rawls’s “libertyprinciple” – correctly interpreted it does notsupport non-therapeutic research on cognitivelyimpaired patients. Three other ‘Rawlsian’ arguments are suggested by Maio’s discussion –two “self-respect” arguments and a “presumed consent” argument – but none of them are convincing. However, an alternative argument developed from Rawls’s discussion of “justice in health care” in his most recent book, Justice as Fairness: A Restatement, may justify certain kinds of non-therapeutic research on some cognitively impaired patients in special circumstances. We should not expect anything more permissive from a liberal theory of justice.
Keywords Philosophy   Philosophy   Ethics   Philosophy of Medicine   General Surgery   History of Medicine
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Reprint years 2004
DOI 10.1023/B:META.0000006823.03739.e3
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Research Ethics and the Principle of Justice as Fairness – a Restatement.Giovanni Maio - 2003 - Theoretical Medicine and Bioethics 24 (5):395-406.

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