Journal of Law, Medicine and Ethics 39 (4):605-613 (2011)

Research now provides participants greater indications of genetic risk for disease, even for conditions incidental to the research study. Given this development, should such information also be disclosed to the family of research participants? There has been some indication at the national level that genetic risk information can be disclosed to participants' families; however, limited attention has been given to returning research results to family. Thus, we have also incorporated the discussion surrounding the disclosure of genetic risk discovered in the clinic (e.g., genetic testing). A number of important questions are examined: Should genetic research results be provided to family? Are there differences between clinical and research findings that would prevent research results from being disclosed to family? Who should make the disclosure, if in fact it is done at all? We conclude by noting that the return of results is increasingly accepted as technology permits the discovery of more and more medically useful data. However, debates of whether results should be returned to participants must first be settled before moving to familial disclosure
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1111/j.1748-720X.2011.00627.x
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,410
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Is There a Duty to Share Genetic Information?S. Matthew Liao - 2009 - Journal of Medical Ethics 35 (5):306-309.

View all 6 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

The Return of Results of Deceased Research Participants.Anne Marie Tassé - 2011 - Journal of Law, Medicine and Ethics 39 (4):621-630.
Is There a Duty to Share Genetic Information?S. Matthew Liao - 2009 - Journal of Medical Ethics 35 (5):306-309.


Added to PP index

Total views
20 ( #560,612 of 2,519,863 )

Recent downloads (6 months)
11 ( #66,568 of 2,519,863 )

How can I increase my downloads?


My notes