Familial Communication of Research Results: A Need to Know?

Journal of Law, Medicine & Ethics 39 (4):605-613 (2011)
Research now provides participants greater indications of genetic risk for disease, even for conditions incidental to the research study. Given this development, should such information also be disclosed to the family of research participants? There has been some indication at the national level that genetic risk information can be disclosed to participants' families; however, limited attention has been given to returning research results to family. Thus, we have also incorporated the discussion surrounding the disclosure of genetic risk discovered in the clinic (e.g., genetic testing). A number of important questions are examined: Should genetic research results be provided to family? Are there differences between clinical and research findings that would prevent research results from being disclosed to family? Who should make the disclosure, if in fact it is done at all? We conclude by noting that the return of results is increasingly accepted as technology permits the discovery of more and more medically useful data. However, debates of whether results should be returned to participants must first be settled before moving to familial disclosure
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1111/j.1748-720X.2011.00627.x
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history
Request removal from index
Download options
Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 28,840
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA
Is There a Duty to Share Genetic Information?S. Matthew Liao - 2009 - Journal of Medical Ethics 35 (5):306-309.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles
The Return of Results of Deceased Research Participants.Anne Marie Tassé - 2011 - Journal of Law, Medicine & Ethics 39 (4):621-630.
Is There a Duty to Share Genetic Information?S. Matthew Liao - 2009 - Journal of Medical Ethics 35 (5):306-309.

Monthly downloads

Added to index


Total downloads

9 ( #466,268 of 2,177,988 )

Recent downloads (6 months)

1 ( #317,698 of 2,177,988 )

How can I increase my downloads?

My notes
Sign in to use this feature

There  are no threads in this forum
Nothing in this forum yet.

Other forums