Bioethics 26 (2):93-100 (2012)
We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. In particular, we illustrate: i) which research should be authorized by donors; ii) how to regulate access to information; iii) the fundamental role played by a Third Party Authority in assuring compliance with the reciprocal expectations and obligations of donors and scientists. Finally, we briefly analyse two issues that might represent important elements of a ‘new alliance’ between researchers and donors to which the trusted consent could pave the way: i) the correlations between needs and rights of the two parties, and ii) possible economic transactions
|Keywords||new alliance trust biobank consent|
|Categories||categorize this paper)|
References found in this work BETA
No references found.
Citations of this work BETA
„Personalisierte Medizin“ in der Onkologie: Ärztliche Einschätzungen der aktuellen Entwicklung in der Krankenversorgung. [REVIEW]Sebastian Wäscher, Jan Schildmann, Caroline Brall & Jochen Vollmann - 2013 - Ethik in der Medizin 25 (3):205-214.
Similar books and articles
A Puzzle About Consent in Research and in Practice.Eric Chwang - 2010 - Journal of Applied Philosophy 27 (3):258-272.
Personal View: Withdrawal of Consent by Sperm Donors.Peter D. Sozou, Sally Sheldon & Geraldine M. Hartshorne - unknown
Timing Invitations to Participate in Clinical Research: Preliminary Versus Informed Consent.Ana Smith Iltis - 2005 - Journal of Medicine and Philosophy 30 (1):89 – 106.
The New Belgian Law on Biobanks: Some Comments From an Ethical Perspective.Sigrid Sterckx & Kristof van Assche - 2011 - Health Care Analysis 19 (3):247-258.
Who Should Control the Use of Human Embryonic Stem Cell Lines: A Defence of the Donors' Ability to Control. [REVIEW]Søren Holm - 2006 - Journal of Bioethical Inquiry 3 (1-2):55-68.
Biobanks--When is Re-Consent Necessary?K. S. Steinsbekk & B. Solberg - 2011 - Public Health Ethics 4 (3):236-250.
Relating to Participants: How Close Do Biobanks and Donors Really Want to Be? [REVIEW]Mairi Levitt - 2011 - Health Care Analysis 19 (3):220-230.
Reconsidering the Value of Consent in Biobank Research.Judy Allen & Beverley Mcnamara - 2011 - Bioethics 25 (3):155-166.
Added to index2010-05-18
Total downloads33 ( #155,488 of 2,168,220 )
Recent downloads (6 months)1 ( #346,758 of 2,168,220 )
How can I increase my downloads?