Genetic information: making a just world strange

Theoretical Medicine and Bioethics 35 (3):231-246 (2014)

Authors
Iain Brassington
University of Manchester
Abstract
In an article recently published in this journal, I raised a puzzle about the control of genetic information, suggesting a situation in which it might turn out that we have a duty to remain in ignorance about at least some aspects of our own genome. In this article, I propose a way that would make sense of how the puzzle arises, and offer a way to resolve it and similar puzzles in future: in essence, we would consider genetic information to be something the distribution of which may be more or less just. We would not know in advance what a just distribution would be, though, and in some cases there might still be a justice-based reason to deny a person genetic information about himself. However, others might also have justice-based claims to be able to access that information. This suggests that there is a possible world in which one person is entitled to at least some genetic information about another, while that other person—to whom the information refers—is not, and that this world would be just
Keywords Genetic information  Privacy  Insurance  Justice
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DOI 10.1007/s11017-014-9292-6
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References found in this work BETA

A Political Account of Corporate Moral Responsibility.Jeffery Smith - 2011 - Ethical Theory and Moral Practice 14 (2):223 - 246.
Corporations and Non‐Agential Moral Responsibility.James Dempsey - 2013 - Journal of Applied Philosophy 30 (4):334-350.
Is There a Duty to Remain in Ignorance?Iain Brassington - 2011 - Theoretical Medicine and Bioethics 32 (2):101-115.

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