Disclosing Individual Genetic Research Results to Deceased Participants' Relatives by Means of a Qualified Disclosure Policy
American Journal of Bioethics 12 (10):10-12 (2012)
Abstract
The American Journal of Bioethics, Volume 12, Issue 10, Page 10-12, October 2012DOI
10.1080/15265161.2012.699145
My notes
Similar books and articles
Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.
Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives”.Sara Chandros Hull, Ben Chan, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (12):W9-W10.
Disclosing individual genetic results to research participants.Vardit Ravitsky & Benjamin S. Wilfond - 2006 - American Journal of Bioethics 6 (6):8 – 17.
The Return of Results of Deceased Research Participants.Anne Marie Tassé - 2011 - Journal of Law, Medicine and Ethics 39 (4):621-630.
Familial Communication of Research Results: A Need to Know?Lee Black & Kelly A. McClellan - 2011 - Journal of Law, Medicine and Ethics 39 (4):605-613.
Undesirable implications of disclosing individual genetic results to research participants.Leslie Meltzer Henry - unknown
Taking our obligations to research participants seriously: Disclosing individual results of genetic research.Teri A. Manolio - 2006 - American Journal of Bioethics 6 (6):32 – 34.
Undesirable implications of disclosing individual genetic results to research participants.Leslie A. Meltzer - 2006 - American Journal of Bioethics 6 (6):28 – 30.
Disclosing Decedents' Research Results to Relatives Violates the HIPAA Privacy Rule.Mark A. Rothstein - 2012 - American Journal of Bioethics 12 (10):16-17.
Response to Open Peer Commentaries on “Disclosing Individual Genetic Results to Research Participants”: Defining Clinical Utility And Revisiting the Role of Relationships.Vardit Ravitsky & Benjamin S. Wilfond - 2006 - American Journal of Bioethics 6 (6):W10-W12.
Disclosing Results to Genomic Research Participants: Differences That Matter.Alessandro Blasimme, Alexandra Soulier, Sophie Julia, Samantha Leonard & Anne Cambon-Thomsen - 2012 - American Journal of Bioethics 12 (10):20-22.
Beneficence, Clinical Urgency, and the Return of Individual Research Results to Relatives.Stephanie M. Fullerton, Susan Brown Trinidad, Gail P. Jarvik & Wylie Burke - 2012 - American Journal of Bioethics 12 (10):9-10.
Clinical utility and full disclosure of genetic results to research participants.Richard R. Sharp & Morris W. Foster - 2006 - American Journal of Bioethics 6 (6):42 – 44.
Thresholds and boundaries in the disclosure of individual genetic research results.Lynn G. Dressler & Eric T. Juengst - 2006 - American Journal of Bioethics 6 (6):18 – 20.
Analytics
Added to PP
2012-09-14
Downloads
24 (#482,779)
6 months
1 (#447,993)
2012-09-14
Downloads
24 (#482,779)
6 months
1 (#447,993)
Historical graph of downloads
Citations of this work
Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.Deborah R. Gordon, Carmen Radecki Breitkopf, Marguerite Robinson, Wesley O. Petersen, Jason S. Egginton, Kari G. Chaffee, Gloria M. Petersen, Susan M. Wolf & Barbara A. Koenig - 2019 - AJOB Empirical Bioethics 10 (1):1-22.
A perspective from clinical providers and patients: Researchers' duty to actively look for genetic incidental findings.Kathryn M. Ross & Marian Reiff - 2013 - American Journal of Bioethics 13 (2):56-58.
Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives”.Sara Chandros Hull, Ben Chan, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (12):W9-W10.
References found in this work
Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.
Return of “Accurate” and “Actionable” Results: Yes!Bartha Maria Knoppers & Claude Laberge - 2009 - American Journal of Bioethics 9 (6-7):107-109.
Familial Communication of Research Results: A Need to Know?Lee Black & Kelly A. McClellan - 2011 - Journal of Law, Medicine and Ethics 39 (4):605-613.
Familial Communication of Research Results: A Need to Know?Lee Black & Kelly A. McClellan - 2011 - Journal of Law, Medicine and Ethics 39 (4):605-613.
