Voluntary assent in biomedical research with adolescents: A comparison of parent and adolescent views

Ethics and Behavior 13 (1):79 – 95 (2003)
  Copy   BIBTEX

Abstract

An informed consent and voluntary assent in biomedical research with adolescents is contingent on a variety of factors, including adolescent and parent perceptions of research risk, benefit, and decision-making autonomy. Thirty-seven adolescents with asthma and their parents evaluated a high or low aversion form of a pediatric asthma research vignette and provided an enrollment decision; their perceptions of family influence over the participation decision; and evaluations of risk, aversion, benefit, and burden of study procedures. Adolescents and their parents agreed on research participation decisions 74% of the time, yet both claimed ultimate responsibility for the participation decision. Both rated most study procedures as significantly more aversive than risky. Parents were more likely to rate aspects of the hypothetical study as beneficial and to provide higher risk ratings for procedures. Disagreements concerning research participation decisions and decision-making autonomy have implications for the exercise of voluntary assent in biomedical research

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 92,813

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Analytics

Added to PP
2009-01-28

Downloads
23 (#701,105)

6 months
8 (#411,218)

Historical graph of downloads
How can I increase my downloads?

References found in this work

The Moral Judgement of the Child.Jean Piaget - 1933 - Philosophy 8 (31):373-374.
The Moral Judgment of the Child.Jean Piaget - 1934 - Mind 43 (169):85-99.
The Ethical Analysis of Risk.Charles Weijer - 2000 - Journal of Law, Medicine and Ethics 28 (4):344-361.
The Ethical Analysis of Risk.Charles Weijer - 2000 - Journal of Law, Medicine and Ethics 28 (4):344-361.

View all 9 references / Add more references