Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure

Journal of Medical Ethics 38 (2):127-129 (2012)
  Copy   BIBTEX

Abstract

Respecting and protecting the confidentiality of data and the privacy of individuals regarding the information that they have given as participants in a research project is a cornerstone of complying with accepted research standards. However, in longitudinal studies, establishing and maintaining privacy is often challenging because of the necessity of repeated contact with participants. A novel internet-based solution is introduced here, which maintains privacy while at the same time ensures linkage of data to individual participants in a repeated measures design. With the use of the anonymous repeated measurements via email (ARME) procedure, two separate one-way communication systems are established through ad hoc email accounts and a secure study website. Strengths and limitations of the approach are discussed

Other Versions

No versions found

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 106,951

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Longitudinal Study Designs.Stewart J. Anderson - 2019 - In Pranee Liamputtong, Handbook of Research Methods in Health Social Sciences. Springer Singapore. pp. 603-622.
Anonymization and Revocation of CP-ABE Based Ring Networks.B. Ravinder Reddy - 2024 - International Journal of Engineering Innovations and Management Strategies, 1 (5):1-15.
Ethical aspects in eHealth – design of a privacy-friendly system.Milica Milutinovic & Bart De Decker - 2016 - Journal of Information, Communication and Ethics in Society 14 (1):49-69.

Analytics

Added to PP
2012-01-21

Downloads
58 (#411,599)

6 months
13 (#267,579)

Historical graph of downloads
How can I increase my downloads?