Clinical Ethics 6 (2):91-96 (2011)

Biomedical research involving human participants is highly regulated and subject to stringent ethical requirements. Clinical research ethics, regulation and policy have tended to focus almost exclusively on the protection of participants' interests against harms that might result from taking part in research. Less consideration, however, has been given to the interests that patients may themselves have in research participation, even in trials that may be beyond the bounds of current clinical research practice. In this paper, we consider the case of a suggested extension to clinical trial protocols to explore the ethics of participation in ‘risky’ research. We argue that patients may have a strong interest in taking part in research, and that even when greater-than-usual risks may be present, such research can be both ethically and scientifically justified. Finally, we suggest that there might be scope in some cases to assert a right to participate in research, and that the possibility of such a right merits further consideration
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1258/ce.2011.011019
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 62,343
Through your library

References found in this work BETA

Scientific Research is a Moral Duty.J. Harris - 2005 - Journal of Medical Ethics 31 (4):242-248.

View all 7 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Clinical Research Consultation: A Casebook.Marion Danis (ed.) - 2012 - Oxford University Press.
Safeguarding Children in Clinical Research.S. D. Edwards - 2012 - Nursing Ethics 19 (4):530-537.
Subversive Subjects: Rule‐Breaking and Deception in Clinical Trials.Rebecca Dresser - 2013 - Journal of Law, Medicine and Ethics 41 (4):829-840.


Added to PP index

Total views
32 ( #337,775 of 2,445,362 )

Recent downloads (6 months)
1 ( #457,131 of 2,445,362 )

How can I increase my downloads?


My notes