Journal of Medical Ethics 46 (5):300-303 (2020)
AbstractThere is significant controversy over whether patients have a ‘right not to know’ information relevant to their health. Some arguments for limiting such a right appeal to potential burdens on others that a patient’s avoidable ignorance might generate. This paper develops this argument by extending it to cases where refusal of relevant information may generate greater demands on a publicly funded healthcare system. In such cases, patients may have an ‘obligation to know’. However, we cannot infer from the fact that a patient has an obligation to know that she does not also have a right not to know. The right not to know is held against medical professionals at a formal institutional level. We have reason to protect patients’ control over the information that they receive, even if in individual instances patients exercise this control in ways that violate obligations.
Added to PP
Historical graph of downloads
References found in this work
The Right Not to Know: An Autonomy Based Approach.R. Andorno - 2004 - Journal of Medical Ethics 30 (5):435-439.
Convention for Protection of Human Rights and Dignity of the Human Being with Regard to the Application of Biology and Biomedicine: Convention on Human Rights and Biomedicine.Council of Europe - 1997 - Kennedy Institute of Ethics Journal 7 (3):277-290.
Genetic Links, Family Ties, and Social Bonds: Rights and Responsibilities in the Face of Genetic Knowledge.Rosamond Rhodes - 1998 - Journal of Medicine and Philosophy 23 (1):10 – 30.
Citations of this work
Is the Right Not to Know an Instance of ‘Bad Faith’?Aisha Deslandes - 2020 - Journal of Medical Ethics 46 (5):308-308.
Ethical Implications of Alzheimer’s Disease Prediction in Asymptomatic Individuals Through Artificial Intelligence.Frank Ursin, Cristian Timmermann & Florian Steger - 2021 - Diagnostics 11 (3):440.
The Right Not to Know: Some Steps Towards a Compromise.Ben Davies & Julian Savulescu - 2021 - Ethical Theory and Moral Practice 24 (1):137-150.
‘The Right Not to Know and the Obligation to Know’, Response to Commentaries.Ben Davies - 2020 - Journal of Medical Ethics 46 (5):309-310.
Similar books and articles
The Morality of Refusing to Treat HIV‐Positive Patients.Mitchell Silver - 1989 - Journal of Applied Philosophy 6 (2):149-158.
Why Patients Have a Moral Obligation to Give Care to Clinicians.Stephen Buetow - 2014 - Journal of Evaluation in Clinical Practice 20 (6):890-895.
Are Patients Receiving Enough Information About Healthcare Rationing? A Qualitative Study.A. Owen-Smith, J. Coast & J. Donovan - 2010 - Journal of Medical Ethics 36 (2):88-92.
The Duty of the Patient to Cooperate.Jörg Löschke - 2017 - Jahrbuch für Wissenschaft Und Ethik 21 (1):7-26.
Balancing Professional Obligations and Risks to Providers in Learning Healthcare Systems.Jan Piasecki & Vilius Dranseika - 2021 - Journal of Medical Ethics 47 (6):413-416.
Patients' Ethical Obligation for Their Health.R. C. Sider & C. D. Clements - 1984 - Journal of Medical Ethics 10 (3):138-142.
Mandatory Disclosure and Medical Paternalism.Emma Bullock - 2016 - Ethical Theory and Moral Practice 19 (2):409-424.
Selecting Treatment Options and Choosing Between them: Delineating Patient and Professional Autonomy in Shared Decision-Making.Emma Cave - 2020 - Health Care Analysis 28 (1):4-24.
On the Supposed Incoherence of Obligations to Oneself.Janis David Schaab - 2021 - Australasian Journal of Philosophy 99 (1):175-189.
Is There a Moral Obligation to Develop Brain Implants Involving NanoBionic Technologies? Ethical Issues for Clinical Trials.Frédéric Gilbert & Susan Dodds - 2014 - NanoEthics 8 (1):49-56.
Nurses' Professional Care Obligation and Their Attitudes Towards SARS Infection Control Measures in Taiwan During and After the 2003 Epidemic.Huey-Ming Tzeng - 2004 - Nursing Ethics 11 (3):277-289.