Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children
Medicine, Health Care and Philosophy 18 (3):421-431 (2015)
AbstractThe involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It is claimed that children’s bodies are not mere physical objects, but body-subjects due to which children, as persons, can contribute to research that may hold no direct clinical benefit to them even before they can give informed consent.
Similar books and articles
Erratum to: Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.Eva De Clercq, Domnita Oana Badarau, Katharina M. Ruhe & Tenzin Wangmo - 2015 - Medicine, Health Care and Philosophy 18 (3):433-433.
End-of-Life Decision Making in Pediatrics: Literature Review on Children's and Adolescents’ Participation.Katharina M. Ruhe, Domnita O. Badarau, Bernice S. Elger & Tenzin Wangmo - 2014 - AJOB Empirical Bioethics 5 (2):44-54.
A classification of clinical paediatric research with analysis of related ethical themes.J. Pearn - 1987 - Journal of Medical Ethics 13 (1):26-30.
Using empirical data to inform the ethical evaluation of placebo controlled trials.Jeremy Sugarman - 2004 - Science and Engineering Ethics 10 (1):29-35.
Children and health-care research: best treatment, best interests and best practice.Hazel Biggs - 2011 - Clinical Ethics 6 (1):15-19.
Non-beneficial pediatric research and the best interests standard: A legal and ethical reconciliation.Paul Litton - unknown
Los menores y adolescentes en la investigación clínica. Tensiones y aspectos éticos.Mirtha Sáenz Cortés, María Teresa Escobar López & Chantal Carmen Aristizábal Tobler - 2016 - Escritos 24 (53):345-367.
A New Justification for Pediatric Research Without the Potential for Clinical Benefit.David Wendler - 2012 - American Journal of Bioethics 12 (1):23 - 31.
Competent minors and health-care research: autonomy does not rule, okay?Hazel Biggs - 2009 - Clinical Ethics 4 (4):176-180.
Forschung an Minderjährigen im internationalen Vergleich: Bilanz und Zukunftsperspektiven. [REVIEW]Matthias Dahl & Claudia Wiesemann - 2001 - Ethik in der Medizin 13 (1-2):87-110.
The obligation to ensure access to beneficial treatments for research participants at the conclusion of clinical trials.J. V. Lavery - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford Textbook of Clinical Research Ethics. Oxford University Press. pp. 697--710.
On using people merely as a means in clinical research.Riekeder Graaf & Johannes J. M. Delden - forthcoming - Bioethics.
End of Life Pediatric Research: What About the Ethics? [REVIEW]Danielle Laudy - 2009 - Journal of Academic Ethics 7 (1-2):87-91.
Seven-year-old children's perceptions of participating in a comprehensive clinical birth cohort study.Anne Gammelgaard & Hans Bisgaard - 2009 - Clinical Ethics 4 (2):79-84.
Added to PP
Historical graph of downloads
Citations of this work
Child’s objection to non-beneficial research: capacity and distress based models.Marcin Waligora, Joanna Różyńska & Jan Piasecki - 2016 - Medicine, Health Care and Philosophy 19 (1):65-70.
Is decision-making capacity an “essentially contested” concept in pediatrics?Eva De Clercq, Katharina Ruhe, Michel Rost & Bernice Elger - 2017 - Medicine, Health Care and Philosophy 20 (3):425-433.
References found in this work
Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
The Patient as Person: Explorations in Medical Ethics.Paul Ramsey - 1970 - New Haven: Yale University Press.