A medical information commons is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social issues inherent to sharing data with an MIC. Deliberants made recommendations regarding opt-in consent, transparent data policies, public representation on MIC governing boards, and strict data security and privacy protection. Community engagement is critical to earning the public's trust.
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DOI 10.1177/1073110519840486
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A Typology of Public Engagement Mechanisms.Lynn J. Frewer & Gene Rowe - 2005 - Science, Technology, and Human Values 30 (2):251-290.

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