BMC Medical Ethics 15 (1):62 (2014)

Abstract
The practice of making datasets publicly available for use by the wider scientific community has become firmly integrated in genomic science. One significant gap in literature around data sharing concerns how it impacts on scientists’ ability to preserve values and ethical standards that form an essential component of scientific collaborations. We conducted a qualitative sociological study examining the potential for harm to ethnic groups, and implications of such ethical concerns for data sharing. We focused our empirical work on the MalariaGEN Consortium, one of the first international collaborative genomics research projects in Africa
Keywords Data sharing  Genomics  Africa  MalariaGEN  Ethnic stigmatisation  Secondary use  Ethics  Ethnic groups
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DOI 10.1186/1472-6939-15-62
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