Journal of Law, Medicine and Ethics 48 (S1):187-195 (2020)
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| Abstract |
In this article, we consider the possible application of the European General Data Protection Regulation to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for lex specialis that would provide greater clarity and certainty regarding the processing of health data by for research purposes, including these non-traditional researchers.
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| DOI | 10.1177/1073110520917046 |
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References found in this work BETA
Citizen Science on Your Smartphone: An ELSI Research Agenda: Currents in Contemporary Bioethics.Mark A. Rothstein, John T. Wilbanks & Kyle B. Brothers - 2015 - Journal of Law, Medicine and Ethics 43 (4):897-903.
The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital Era.Edward S. Dove - 2018 - Journal of Law, Medicine and Ethics 46 (4):1013-1030.
Social Networks and Web 2.0: Are Users Also Bound by Data Protection Regulations? [REVIEW]Brendan Van Alsenoy, Joris Ballet, Aleksandra Kuczerawy & Jos Dumortier - 2009 - Identity in the Information Society 2 (1):65-79.
Citations of this work BETA
Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.Mark A. Rothstein, John T. Wilbanks, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Megan Doerr, Barbara J. Evans, Catherine M. Hammack-Aviran, Michelle L. McGowan & Stacey A. Tovino - 2020 - Journal of Law, Medicine and Ethics 48 (S1):196-226.
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