Journal of Law, Medicine and Ethics 48 (S1):187-195 (2020)

In this article, we consider the possible application of the European General Data Protection Regulation to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for lex specialis that would provide greater clarity and certainty regarding the processing of health data by for research purposes, including these non-traditional researchers.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/1073110520917046
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,231
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Privacy and Security Issues with Mobile Health Research Applications.Stacey A. Tovino - 2020 - Journal of Law, Medicine and Ethics 48 (S1):154-158.
Do Groups Have Moral Standing in Unregulated mHealth Research?Joon-Ho Yu & Eric Juengst - 2020 - Journal of Law, Medicine and Ethics 48 (S1):122-128.
Data, Privacy, and the Individual.Carissa Véliz - 2020 - Center for the Governance of Change.
Assessing the Thin Regulation of Consumer-Facing Health Technologies.Nicolas P. Terry - 2020 - Journal of Law, Medicine and Ethics 48 (S1):94-102.


Added to PP index

Total views
4 ( #1,282,528 of 2,518,494 )

Recent downloads (6 months)
1 ( #408,186 of 2,518,494 )

How can I increase my downloads?


My notes