Correlates of parental participation during informed consent for randomized clinical trials in the treatment of childhood leukemia

Ethics and Behavior 14 (1):1 – 15 (2004)
This study described parent participation in the informed consent conference for randomized clinical trials (RCTs) in childhood leukemia and documented the relationship of physician communication to parent participation. Parents of 140 children with newly diagnosed leukemia who were eligible for RCTs were studied at six sites using comprehensive methods involving direct observation and transcripts of parent-physician communication based on audiotapes. Parent participation during the informed consent conference reflected a wide range of content categories. Consistent with hypotheses, Physician Rapport and Partnership Building related to parent participation in the informed consent conference but Information Giving did not. Higher parent socioeconomic status also was related to greater parent participation for two of three measures of parent participation. Findings suggest that physician behaviors that provide support and facilitate communication may enhance parental participation in the informed consent conference for RCTs in childhood leukemia.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1207/s15327019eb1401_1
 Save to my reading list
Follow the author(s)
Edit this record
My bibliography
Export citation
Find it on Scholar
Mark as duplicate
Request removal from index
Revision history
Download options
Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 30,793
Through your library
References found in this work BETA
Principles of Biomedical Ethics.Tom L. Beauchamp - 1979 - Oxford University Press.

Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles
Added to PP index

Total downloads
19 ( #287,281 of 2,214,714 )

Recent downloads (6 months)
8 ( #56,051 of 2,214,714 )

How can I increase my downloads?

Monthly downloads
My notes
Sign in to use this feature