American Journal of Bioethics 4 (2):21 – 28 (2004)
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In the newly emerging debates about genetics and justice three distinct principles have begun to emerge concerning what the distributive aim of genetic interventions should be. These principles are: genetic equality, a genetic decent minimum, and the genetic difference principle. In this paper, I examine the rationale of each of these principles and argue that genetic equality and a genetic decent minimum are ill-equipped to tackle what I call the currency problem and the problem of weight. The genetic difference principle is the most promising of the three principles and I develop this principle so that it takes seriously the concerns of just health care and distributive justice in general. Given the strains on public funds for other important social programmes, the costs of pursuing genetic interventions and the nature of genetic interventions, I conclude that a more lax interpretation of the genetic difference principle is appropriate. This interpretation stipulates that genetic inequalities should be arranged so that they are to the greatest reasonable benefit of the least advantaged. Such a proposal is consistent with prioritarianism and provides some practical guidance for non-ideal societies–that is, societies that do not have the endless amount of resources needed to satisfy every requirement of justice.
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DOI | 10.1162/152651604323097952 |
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References found in this work BETA
From Chance to Choice: Genetics and Justice.Allen Buchanan, Dan W. Brock, Norman Daniels & Daniel Wikler - 2000 - Philosophy 76 (297):472-475.
View all 13 references / Add more references
Citations of this work BETA
A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.Stephanie C. Chen & David T. Wasserman - 2017 - American Journal of Bioethics 17 (1):3-18.
Enhancement, Biomedical.Thomas Douglas - 2013 - In Hugh LaFollette (ed.), The International Encyclopedia of Ethics. Wiley-Blackwell.
Whereto Speculative Bioethics? Technological Visions and Future Simulations in a Science Fictional Culture.Ari Schick - 2016 - Medical Humanities 42 (4):225-231.
Enhancing Equality.Alberto Giubilini & Francesca Minerva - 2019 - Journal of Medicine and Philosophy 44 (3):335-354.
View all 9 citations / Add more citations
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