Journal of Medical Ethics 47 (10):689-696 (2021)

Authors
Mackenzie Graham
Oxford University
Abstract
A rapidly growing proportion of health research uses ‘secondary data’: data used for purposes other than those for which it was originally collected. Do researchers using secondary data have an obligation to disclose individual research findings to participants? While the importance of this question has been duly recognised in the context of primary research, it remains largely unexamined in the context of research using secondary data. In this paper, we critically examine the arguments for a moral obligation to disclose individual research findings in the context of primary research, to determine if they can be applied to secondary research. We conclude that they cannot. We then propose that the nature of the relationship between researchers and participants is what gives rise to particular moral obligations, including the obligation to disclose individual results. We argue that the relationship between researchers and participants in secondary research does not generate an obligation to disclose. However, we also argue that the biobanks or data archives which collect and provide access to secondary data may have such an obligation, depending on the nature of the relationship they establish with participants.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1136/medethics-2020-106941
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 64,046
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

View all 9 references / Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles

The Use of Secondary Data in Business Ethics Research.Christopher J. Cowton - 1998 - Journal of Business Ethics 17 (4):423-434.
Pitfalls and Promises: The Use of Secondary Data Analysis in Educational Research.Emma Smith - 2008 - British Journal of Educational Studies 56 (3):323-339.
Understanding Incidental Findings in the Context of Genetics and Genomics.Mildred K. Cho - 2008 - Journal of Law, Medicine and Ethics 36 (2):280-285.
Understanding Incidental Findings in the Context of Genetics and Genomics.Mildred K. Cho - 2008 - Journal of Law, Medicine and Ethics 36 (2):280-285.

Analytics

Added to PP index
2021-01-14

Total views
5 ( #1,177,061 of 2,454,486 )

Recent downloads (6 months)
1 ( #449,269 of 2,454,486 )

How can I increase my downloads?

Downloads

My notes