BMC Medical Ethics 22 (1):1-8 (2021)

Bert Heinrichs
Universität Bonn
BackgroundAdvance research directives have been suggested as a means by which to facilitate research with incapacitated subjects, in particular in the context of dementia research. However, established disclosure requirements for study participation raise an ethical problem for the application of ARDs: While regular consent procedures call for detailed information on a specific study, ARDs can typically only include generic information. The introduction of ARDs could thus establish a double standard in the sense that within the context of ARDs, type disclosure would be considered sufficient, while beyond this context, token disclosure would remain necessary.Main bodyThis paper provides an ethical analysis of ARDs, taking into account the results of numerous empirical studies that have been performed so far. It will be argued that a revised understanding of informed consent can allow for context-sensitive disclosure standards. As a consequence, ARDs that include type disclosure can be acceptable under suitable circumstances. Such an approach raises a number of objections. A thorough examination shows, however, that they are not sufficient to justify a rejection of the approach.ConclusionThe approach presented in this paper avoids introducing a double standard. It is, therefore, more suitable for the implementation of ARDs than established approaches.
Keywords No keywords specified (fix it)
Categories No categories specified
(categorize this paper)
DOI 10.1186/s12910-021-00704-5
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 65,703
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Foundations of Illocutionary Logic.John Rogers Searle & Daniel Vanderveken - 1985 - Cambridge, England: Cambridge University Press.
Advance Consent, Critical Interests and Dementia Research.Tom Buller - 2015 - Journal of Medical Ethics 41 (8):701-707.

View all 10 references / Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles

Advance Research Directives in Germany: A Proposal for a Disclosure Standard.Matthé Scholten - 2018 - GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry 31 (2):77-86.
Advance Directives in Canada.Alister Browne & Bill Sullivan - 2006 - Cambridge Quarterly of Healthcare Ethics 15 (3):256-260.
Descendants and Advance Directives.Christopher Buford - 2014 - Monash Bioethics Review 32 (3-4):217-231.


Added to PP index

Total views

Recent downloads (6 months)

How can I increase my downloads?


Sorry, there are not enough data points to plot this chart.

My notes