Journal of Law, Medicine and Ethics 42 (3):344-355 (2014)

Authors
Susan Wolf
University of North Carolina, Chapel Hill
Abstract
As exome and genome sequencing move into clinical application, questions surround how to elicit consent and handle potential return of individual genomic results. This study analyzes nine consent forms used in NIH-funded sequencing studies. Content analysis reveals considerable heterogeneity, including in defining results that may be returned, identifying potential benefits and risks of return, protecting privacy, addressing placement of results in the medical record, and data-sharing. In response to lack of consensus, we offer recommendations
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1111/jlme.12151
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 53,666
Through your library

References found in this work BETA

Add more references

Citations of this work BETA

View all 8 citations / Add more citations

Similar books and articles

Informed Consent in Acute Myocardial Infarction Research.Anne Gammelgaard - 2004 - Journal of Medicine and Philosophy 29 (4):417 – 434.
Habits, Nudges, and Consent.Ezio Di Nucci - 2013 - American Journal of Bioethics 13 (6):27 - 29.
Return of Results: Towards a Lexicon?Bartha Maria Knoppers & Amy Dam - 2011 - Journal of Law, Medicine and Ethics 39 (4):577-582.
Informed Consent and Routinisation.Thomas Ploug & Soren Holm - 2013 - Journal of Medical Ethics 39 (4):214-218.
A Linguistic Model of Informed Consent.Jan Marta - 1996 - Journal of Medicine and Philosophy 21 (1):41-60.

Analytics

Added to PP index
2014-09-27

Total views
40 ( #242,443 of 2,349,173 )

Recent downloads (6 months)
3 ( #239,088 of 2,349,173 )

How can I increase my downloads?

Downloads

My notes