Big Bad Data: Law, Public Health, and Biomedical Databases

Journal of Law, Medicine and Ethics 41 (s1):56-60 (2013)
  Copy   BIBTEX


The accelerating adoption of electronic health record systems will have profound impacts on clinical care. It will also have far-reaching implications for public health research and surveillance, which in turn could lead to changes in public policy, statutes, and regulations. The public health benefits of EHR use can be significant. However, researchers and analysts who rely on EHR data must proceed with caution and understand the potential limitations of EHRs.Much has been written about the risk of EHR privacy breaches. This paper focuses on a different set of concerns, those relating to data quality. Unlike clinical trial data, EHR data is not recorded primarily to meet the needs of researchers. Because of clinicians’ workloads, poor user-interface design, and other factors, EHR data is surprisingly likely to be erroneous, miscoded, fragmented, and incomplete. Although EHRs eliminate the problem of cryptic handwriting, other kinds of errors are more common with EHRs than with paper records.



    Upload a copy of this work     Papers currently archived: 91,102

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Big Bad Data: Law, Public Health, and Biomedical Databases.Sharona Hoffman & Andy Podgurski - 2013 - Journal of Law, Medicine and Ethics 41 (s1):56-60.
Forensic DNA databases: genetic testing as a societal choice.A. Patyn & K. Dierickx - 2010 - Journal of Medical Ethics 36 (5):319-320.
The Promise and Perils of Open Medical Data.Sharona Hoffman - 2016 - Hastings Center Report 46 (1):6-7.
Public Health and Public Goods.Jonny Anomaly - 2011 - Public Health Ethics 4 (3):251-259.
Privacy and policy for genetic research.Judith Wagner DeCew - 2004 - Ethics and Information Technology 6 (1):5-14.


Added to PP

10 (#1,074,276)

6 months
3 (#643,273)

Historical graph of downloads
How can I increase my downloads?