Health Care Analysis 30 (1):1-17 (2022)

Authors
Stephen Holland
University of York
Jamie Cawthra
Bloomsbury Institute London
Peter Schröder
Universität Erlangen-Nürnberg
Abstract
Information is clearly vital to public health, but the acquisition and use of public health data elicit serious privacy concerns. One strategy for navigating this dilemma is to build 'trust' in institutions responsible for health information, thereby reducing privacy concerns and increasing willingness to contribute personal data. This strategy, as currently presented in public health literature, has serious shortcomings. But it can be augmented by appealing to the philosophical analysis of the concept of trust. Philosophers distinguish trust and trustworthiness from cognate attitudes, such as confident reliance. Central to this is value congruence: trust is grounded in the perception of shared values. So, the way to build trust in institutions responsible for health data is for those institutions to develop and display values shared by the public. We defend this approach from objections, such as that trust is an interpersonal attitude inappropriate to the way people relate to organisations. The paper then moves on to the practical application of our strategy. Trust and trustworthiness can reduce privacy concerns and increase willingness to share health data, notably, in the context of internal and external threats to data privacy. We end by appealing for the sort of empirical work our proposal requires.
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DOI 10.1007/s10728-021-00436-y
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References found in this work BETA

Freedom and Resentment.Peter Strawson - 1962 - Proceedings of the British Academy 48:187-211.
Trust and Antitrust.Annette Baier - 1986 - Ethics 96 (2):231-260.
Freedom and Resentment.Peter Strawson - 2003 - In Gary Watson (ed.), Free Will. Oxford University Press.
Trust.Carolyn McLeod - 2020 - Stanford Encyclopedia of Philosophy.
Trust as an Affective Attitude.Karen Jones - 1996 - Ethics 107 (1):4-25.

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