Thinking ethically about genetic inheritance: liberal rights, communitarianism and the right to privacy for parents of donor insemination children

Journal of Medical Ethics 34 (4):281-284 (2008)
Abstract
The issue of genetic inheritance, and particularly the contradictory rights of donors, recipients and donor offspring as to the disclosure of donor identities, is ethically complicated. Donors, donor offspring and parents of donor offspring may appeal to individual rights for confidentiality or disclosure within legal systems based on liberal rights discourse. This paper explores the ethical issues of non-disclosure of genetic inheritance by contrasting two principle models used to articulate the problem—liberal and communitarian ethical models. It argues that whilst the latter provides a more constructive avenue to providing an ethics for donation than the competing and contradictory positions represented in a liberal rights approach, it raises issues of ethical judgement and authority that remain problematic. This ethical discussion is supported by a field study, funded by the Wellcome Trust, exploring the perceptions and experiences of recipients of donor sperm and their partners towards donor anonymity. The field study provides the empirical basis of an argument for making ethical judgements on the grounds of the community good rather than individual rights, that nevertheless recognises that both are inherently problematic
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1136/jme.2007.020412
Options
 Save to my reading list
Follow the author(s)
Edit this record
My bibliography
Export citation
Find it on Scholar
Mark as duplicate
Request removal from index
Revision history
Download options
Our Archive


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 30,694
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA
The Risks of Absolute Medical Confidentiality.M. A. Crook - 2013 - Science and Engineering Ethics 19 (1):107-122.

Add more citations

Similar books and articles
Artificial Insemination.David N. James - 1988 - Philosophy and Theology 2 (4):305-326.
Child Abuse: Parental Rights and the Interests of the Child.David Archard - 1990 - Journal of Applied Philosophy 7 (2):183-194.
Fundamental Interests and Parental Rights.Michael W. Austin - 2007 - International Philosophical Quarterly 47 (2):221-235.
Intentional Parenthood and the Nuclear Family.Liezl van Zyl - 2002 - Journal of Medical Humanities 23 (2):107-118.
Liberal and Communitarian Defenses of Workplace Privacy.Rita C. Manning - 1997 - Journal of Business Ethics 16 (8):817-823.
Privacy and the Human Genome Project.David L. Wiesenthal & Neil I. Wiener - 1996 - Ethics and Behavior 6 (3):189 – 202.
Information Sharing in Donor Insemination: A Conflict of Rights and Needs.Ken R. Daniels - 1995 - Cambridge Quarterly of Healthcare Ethics 4 (2):217.
Do Children Have Privacy Rights in the Classroom?Davis Andrew - 2001 - Studies in Philosophy and Education 20 (3):245-254.
Added to PP index
2010-08-24

Total downloads
42 ( #127,735 of 2,197,231 )

Recent downloads (6 months)
2 ( #148,610 of 2,197,231 )

How can I increase my downloads?

Monthly downloads
My notes
Sign in to use this feature