Self-Critical Federal Science? The Ethics Experiment within the U.S. Human Genome Project: ERIC T. JUENGST

Social Philosophy and Policy 13 (2):63-95 (1996)

On October 1, 1988, thirty-five years after co-discovering the structure of the DNA molecule, Dr. James Watson launched an unprecedented experiment in American science policy. In response to a reporter's question at a press conference, he unilaterally set aside 3 to 5 percent of the budget of the newly launched Human Genome Project to support studies of the ethical, legal, and social implications of new advances in human genetics. The Human Genome Project, by providing geneticists with the molecular maps of the human chromosomes that they use to identify specific human genes, will speed the proliferation of a class of DNA-based diagnostic and risk-assessment tests that already create professional ethical and health-policy challenges for clinicians. “The problems are with us now, independent of the genome program, but they will be associated with it,” Watson said. “We should devote real money to discussing these issues.” By 1994, the “ELSI program” had spent almost $20 million in pursuit of its mission, and gained both praise and criticism for its accomplishments.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1017/S0265052500003460
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 44,283
Through your library

References found in this work BETA

The Human Genome Project: Has Blind Reductionism Gone Too Far?Alfred I. Tauber & Sahotra Sarkar - 1992 - Perspectives in Biology and Medicine 35 (2):220-235.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

The Human Genome Project and the Social Contract: A Law Policy Approach.Christian Byk - 1992 - Journal of Medicine and Philosophy 17 (4):371-380.
The Human Genome Project and Bioethics.Eric T. Juengst - 1991 - Kennedy Institute of Ethics Journal 1 (1):71-74.
Orphan Tests.Leslie G. Biesecker - 1996 - Cambridge Quarterly of Healthcare Ethics 5 (2):300.
Subversive Reflections on the Human Genome Project.Alex Rosenberg - 1994 - PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:329 - 335.
Human Genome Editing and Ethical Considerations.Kewal Krishan, Tanuj Kanchan & Bahadur Singh - 2016 - Science and Engineering Ethics 22 (2):597-599.


Added to PP index

Total views
32 ( #270,308 of 2,270,950 )

Recent downloads (6 months)
8 ( #138,221 of 2,270,950 )

How can I increase my downloads?


My notes

Sign in to use this feature