The Right Not to Know and the Duty to Tell: The Case of Relatives

Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser extent than sometimes claimed
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DOI 10.1111/jlme.12117
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Disclosure Two Ways.Erin B. Bernstein - 2015 - Journal of Law, Medicine and Ethics 43 (2):245-254.

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