Domain Experts on Dementia-Care Technologies: Mitigating Risk in Design and Implementation

Science and Engineering Ethics 27 (1):1-24 (2021)
  Copy   BIBTEX

Abstract

There is an urgent need to learn how to appropriately integrate technologies into dementia care. The aims of this Delphi study were to project which technologies will be most prevalent in dementia care in five years, articulate potential benefits and risks, and identify specific options to mitigate risks. Participants were also asked to identify technologies that are most likely to cause value tensions and thus most warrant a conversation with an older person with mild dementia when families are deciding about their use. Twenty-one interdisciplinary domain experts from academia and industry in aging and technology in the U.S. and Canada participated in a two-round online survey using the Delphi approach with an 84% response rate and no attrition between rounds. Rankings were analyzed using frequency counts and written-in responses were thematically analyzed. Twelve technology categories were identified along with a detailed list of risks and benefits for each. Suggestions to mitigate the most commonly raised risks are categorized as follows: intervene during design, make specific technical choices, build in choice and control, require data transparency, place restrictions on data use and ensure security, enable informed consent, and proactively educate users. This study provides information that is needed to navigate person-centered technology use in dementia care. The specific recommendations participants offered are relevant to designers, clinicians, researchers, ethicists, and policy makers and require proactive engagement from design through implementation.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 77,670

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Skeuomorphic Reassurance: Personhood, Dementia, and Gerontechnology.David Kreps - 2016 - In David Kreps, Gordon Fletcher & Marie Griffiths (eds.), Technology and Intimacy: Choice or Coercion. Cham, Switzerland: Springer International. pp. 61-71.
The usual suspects: why techno-fixing dementia is flawed.Karin Rolanda Jongsma & Martin Sand - 2017 - Medicine, Health Care and Philosophy 20 (1):119-130.
Dementia in Our Midst: The Moral Community.Stephen G. Post - 1995 - Cambridge Quarterly of Healthcare Ethics 4 (2):142.
Sexuality, Dementia, and Catholic Long-Term Health Care.James Beauregard - 2015 - The National Catholic Bioethics Quarterly 15 (3):493-513.

Analytics

Added to PP
2021-02-19

Downloads
3 (#1,324,363)

6 months
1 (#480,066)

Historical graph of downloads
How can I increase my downloads?