Medicine, Health Care and Philosophy 20 (1):43-50 (2017)
Abstract |
In biomedical research lack of trust is seen as a great threat that can severely jeopardise the whole biomedical research enterprise. Practices, such as informed consent, and also the administrative and regulatory oversight of research in the form of research ethics committees and Institutional Review Boards, are established to ensure the protection of future research subjects and, at the same time, restore public trust in biomedical research. Empirical research also testifies to the role of trust as one of the decisive factors in research participation and lack of trust as a barrier for consenting to research. However, what is often missing is a clear definition of trust. This paper seeks to address this gap. It starts with a conceptual analysis of the term trust. It compares trust with two other related terms, those of reliance and trustworthiness, and offers a defence of Baier’s attribute of ‘good will’ a basic characteristic of trust. It, then, proceeds to consider trust in the context of biomedical research by examining two questions: First, is trust necessary in biomedical research?; and second, do increases in regulatory oversight of biomedical research also increase trust in the field? This paper argues that regulatory oversight is important for increasing reliance in biomedical research, but it does not improve trust, which remains important for biomedical research. It finishes by pointing at professional integrity as a way of promoting trust and trustworthiness in this field.
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DOI | 10.1007/s11019-016-9721-6 |
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References found in this work BETA
Moral Repair: Reconstructing Moral Relations After Wrongdoing.Margaret Urban Walker - 2006 - Cambridge University Press.
Deciding to Trust, Coming to Believe.Richard Holton - 1994 - Australasian Journal of Philosophy 72 (1):63 – 76.
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Citations of this work BETA
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.
Experimental Design: Ethics, Integrity and the Scientific Method.Jonathan Lewis - 2020 - In Ron Iphofen (ed.), Handbook of Research Ethics and Scientific Integrity. Cham, Switzerland: pp. 459-474.
Trust, Trustworthiness and Sharing Patient Data for Research.Mark Sheehan, Phoebe Friesen, Adrian Balmer, Corina Cheeks, Sara Davidson, James Devereux, Douglas Findlay, Katharine Keats-Rohan, Rob Lawrence & Kamran Shafiq - 2021 - Journal of Medical Ethics 47 (12):26-26.
Ecologies of public trust: The nhs covid-19 contact tracing app.Gabrielle Samuel, Frederica Lucivero, Stephanie Johnson & Heilien Diedericks - 2021 - Journal of Bioethical Inquiry 18 (4):595-608.
Can We Know If Donor Trust Expires? About Trust Relationships and Time in the Context of Open Consent for Future Data Use.Felix Gille & Caroline Brall - 2022 - Journal of Medical Ethics 48 (3):184-188.
View all 15 citations / Add more citations
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