Hypatia 36 (1):1-21 (2021)

Authors
Joshua Miller
Georgetown University
Abstract
Noninvasive prenatal testing promises to enhance women's reproductive autonomy by providing genetic information about the fetus, especially in the detection of genetic impairments like Down syndrome. In practice, however, NIPT provides opportunities for intensified manipulation and control over women's reproductive decisions. Applying Miranda Fricker's concept of epistemic injustice to prenatal screening, this article analyzes how medical professionals impair reproductive decision-making by perpetuating testimonial injustice. They do so by discrediting positive parental testimony about what it is like to raise a child with DS. We argue that this testimonial injustice constitutes a twofold harm: people with DS and their family members who claim that parenting a child with DS may be a rewarding and joyous experience are harmed when they are systematically silenced, disbelieved, and/or denied epistemic credibility by medical professionals, and pregnant women are harmed since they might make poorly informed choices without access to all relevant information. The broader implication of the analysis is that epistemic justice is a precondition of reproductive autonomy. We conclude by calling for federal oversight of the acquisition and dissemination of information that prospective parents receive following a positive diagnosis of DS to ensure that it is comprehensive and up to date.
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DOI 10.1017/hyp.2020.50
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References found in this work BETA

Trusting Experts and Epistemic Humility in Disability.Anita Ho - 2011 - International Journal of Feminist Approaches to Bioethics 4 (2):102-123.
The Individualist Model of Autonomy and the Challenge of Disability.Anita Ho - 2008 - Journal of Bioethical Inquiry 5 (2-3):193-207.
Clinical (Mis) Judgments of Quality of Life After Disability.Sunil Kothari - 2004 - Journal of Clinical Ethics 15 (4):300-307.

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