BMC Medical Ethics 12 (1):20 (2011)

BackgroundThe concept of benefit sharing to enhance the social value of global health research in resource poor settings is now a key strategy for addressing moral issues of relevance to individuals, communities and host countries in resource poor settings when they participate in international collaborative health research.The influence of benefit sharing framework on the conduct of collaborative health research is for instance evidenced by the number of publications and research ethics guidelines that require prior engagement between stakeholders to determine the social value of research to the host communities. While such efforts as the production of international guidance on how to promote the social value of research through such strategies as benefit sharing have been made, the extent to which these ideas and guidelines have been absorbed by those engaged in global health research especially in resource poor settings remains unclear. We examine this awareness among stakeholders involved in health related research in Kenya.MethodsWe conducted in-depth interviews with key informants drawn from within the broader health research system in Kenya including researchers from the mainstream health research institutions, networks and universities, teaching hospitals, policy makers, institutional review boards, civil society organisations and community representative groups.ResultsOur study suggests that although people have a sense of justice and the moral aspects of research, this was not articulated in terms used in the literature and the guidelines on the ethics of global health research.ConclusionThis study demonstrates that while in theory several efforts can be made to address the moral issues of concern to research participants and their communities in resource poor settings, quick fixes such as benefit sharing are not going to be straightforward. We suggest a need to pay closer attention to the processes through which ethical principles are enacted in practice and distil lessons on how best to involve individuals and communities in promoting ethical conduct of global health research in resource poor settings
Keywords info:mesh/Organizations  info:mesh/Cooperative Behavior  info:mesh/Biomedical Research  info:mesh/Comprehension  info:mesh/Universities  info:mesh/Researcher-Subject Relations  info:mesh/Social Justice  info:mesh/Health Resources  info:mesh/Health Policy  info:mesh/Health Services Needs and Demand  info:mesh/Narration  info:mesh/Humans  info:mesh/Kenya  info:mesh/Ethics Committees, Research  info:mesh/Developing Countries  info:mesh/Academies and Institutes  info:mesh/Awareness  info:mesh/Qualitative Research  info:mesh/Questionnaires  info:mesh/Consumer Participation  info:mesh/Hospitals, Teaching  info:mesh/Social Values  info:mesh/Ethics, Research  Humans   Narration   Questionnaires   Cooperative Behavior   Researcher-Subject Relations   Social Values   Awareness   Comprehension   Biomedical Research   Qualitative Research   Developing Countries   Social Justice   Health Policy   Universities   Ethics Committees, Research   Ethics, Research   Hospitals, Teaching   Consumer Participation   Health Resources   Health Services
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DOI 10.1186/1472-6939-12-20
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Responsibility for Global Health.Allen Buchanan & Matthew DeCamp - 2005 - Theoretical Medicine and Bioethics 27 (1):95-114.

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