Ethics and Epistemology in Big Data Research
Journal of Bioethical Inquiry 14 (4):489-500 (2017)
Abstract
Biomedical innovation and translation are increasingly emphasizing research using “big data.” The hope is that big data methods will both speed up research and make its results more applicable to “real-world” patients and health services. While big data research has been embraced by scientists, politicians, industry, and the public, numerous ethical, organizational, and technical/methodological concerns have also been raised. With respect to technical and methodological concerns, there is a view that these will be resolved through sophisticated information technologies, predictive algorithms, and data analysis techniques. While such advances will likely go some way towards resolving technical and methodological issues, we believe that the epistemological issues raised by big data research have important ethical implications and raise questions about the very possibility of big data research achieving its goals.My notes
Similar books and articles
Data return: The sense of the given in educational research.Paul Standish - 2001 - Journal of Philosophy of Education 35 (3):497–518.
Editors' Overview: Topics in the Responsible Management of Research Data.Joe Giffels, Sara H. Vollmer & Stephanie J. Bird - 2010 - Science and Engineering Ethics 16 (4):631-637.
Transparent Practices: Primary and Secondary Data in Business Ethics Dissertations.Shawn W. Nicholson & Terrence B. Bennett - 2009 - Journal of Business Ethics 84 (3):417-425.
Using ‘new’ data sources for ‘old’ newspaper research: Developing guidelines for data collection.Peer Scheepers, Fred Wester & Pytrik Schafraad - 2006 - Communications 31 (4):455-467.
Pitfalls and promises: The use of secondary data analysis in educational research.Emma Smith - 2008 - British Journal of Educational Studies 56 (3):323-339.
An evaluation of a data linkage training workshop for research ethics committees.Kate M. Tan, Felicity S. Flack, Natasha L. Bear & Judy A. Allen - 2015 - BMC Medical Ethics 16 (1):13.
Genomic research data: open vs. restricted access.David B. Resnik - 2010 - IRB: Ethics & Human Research 32 (1):1.
Cross-cultural methodological issues in ethical research.Gael McDonald - 2000 - Journal of Business Ethics 27 (1-2):89 - 104.
Openness in the social sciences: Sharing data.Joan E. Sieber - 1991 - Ethics and Behavior 1 (2):69 – 86.
Using empirical data to inform the ethical evaluation of placebo controlled trials.Jeremy Sugarman - 2004 - Science and Engineering Ethics 10 (1):29-35.
Internet-Based Data Collection: Promises and Realities.Jacob A. Benfield & William J. Szlemko - 2006 - Journal of Research Practice 2 (2):Article D1.
Statistics and ethics in medical research.David L. DeMets - 1999 - Science and Engineering Ethics 5 (1):97-117.
Ethical Issues and Guidelines for Conducting Data Analysis in Psychological Research.Rachel Wasserman - 2013 - Ethics and Behavior 23 (1):3-15.
Data Sharing and Dual-Use Issues.Louise Bezuidenhout - 2011 - Science and Engineering Ethics 19 (1):83-92.
Analytics
Added to PP
2017-03-20
Downloads
75 (#162,796)
6 months
2 (#297,033)
2017-03-20
Downloads
75 (#162,796)
6 months
2 (#297,033)
Historical graph of downloads
Citations of this work
The ethics of algorithms: key problems and solutions.Andreas Tsamados, Nikita Aggarwal, Josh Cowls, Jessica Morley, Huw Roberts, Mariarosaria Taddeo & Luciano Floridi - 2021 - AI and Society.
The ethics of algorithms: key problems and solutions.Andreas Tsamados, Nikita Aggarwal, Josh Cowls, Jessica Morley, Huw Roberts, Mariarosaria Taddeo & Luciano Floridi - 2022 - AI and Society 37 (1):215-230.
The ethics of uncertainty for data subjects.Philip Nickel - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74.
Ethics and Epistemology of Big Data.Ian Kerridge, Paul Mason & Wendy Lipworth - 2017 - Journal of Bioethical Inquiry 14 (4):485-488.
Ethical Issues in Social Science Research Employing Big Data.Mohammad Hosseini, Michał Wieczorek & Bert Gordijn - 2022 - Science and Engineering Ethics 28 (3):1-21.
References found in this work
The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.
The social licence for research: why care.data ran into trouble.Pam Carter, Graeme T. Laurie & Mary Dixon-Woods - 2015 - Journal of Medical Ethics 41 (5):404-409.
Scientific perspectivism: A philosopher of science's response to the challenge of big data biology.Werner Callebaut - 2012 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 43 (1):69-80.
Informed Consent, Big Data, and the Oxymoron of Research That Is Not Research.John P. A. Ioannidis - 2013 - American Journal of Bioethics 13 (4):40 - 42.
Ethical Challenges of Simulation-Driven Big Neuroscience.Markus Christen, Nikola Biller-Andorno, Berit Bringedal, Kevin Grimes, Julian Savulescu & Henrik Walter - 2016 - American Journal of Bioethics Neuroscience 7 (1):5-17.