BMC Medical Ethics 16 (1):1-9 (2015)

Abstract
BackgroundCommunity engagement in research has gained momentum as an approach to improving research, to helping ensure that community concerns are taken into account, and to informing ethical decision-making when research is conducted in contexts of vulnerability. However, guidelines and scholarship regarding community engagement are arguably unsettled, making it difficult to implement and evaluate.DiscussionWe describe normative guidelines on community engagement that have been offered by national and international bodies in the context of HIV-related research, which set the stage for similar work in other health related research. Next, we review the scholarly literature regarding community engagement, outlining the diverse ethical goals ascribed to it. We then discuss practical guidelines that have been issued regarding community engagement. There is a lack of consensus regarding the ethical goals and approaches for community engagement, and an associated lack of indicators and metrics for evaluating success in achieving stated goals. To address these gaps we outline a framework for developing indicators for evaluating the contribution of community engagement to ethical goals in health research.SummaryThere is a critical need to enhance efforts in evaluating community engagement to ensure that the work on the ground reflects the intentions expressed in the guidelines, and to investigate the contribution of specific community engagement practices for making research responsive to community needs and concerns. Evaluation mechanisms should be built into community engagement practices to guide best practices in community engagement and their replication across diverse health research settings
Keywords Research ethics  Community engagement  Participatory research  Global health  Evaluation  Metrics
Categories (categorize this paper)
ISBN(s)
DOI 10.1186/s12910-015-0033-9
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,290
Through your library

References found in this work BETA

View all 8 references / Add more references

Citations of this work BETA

View all 15 citations / Add more citations

Similar books and articles

The Challenges of Community Engagement.Craig Cormick - 2010 - NanoEthics 4 (3):229-231.

Analytics

Added to PP index
2015-07-01

Total views
34 ( #337,323 of 2,518,863 )

Recent downloads (6 months)
1 ( #407,861 of 2,518,863 )

How can I increase my downloads?

Downloads

My notes