Journal of Law, Medicine and Ethics 48 (S1):167-177 (2020)

Abstract
As citizen science expands, questions arise regarding the applicability of norms and policies created in the context of conventional science. This article focuses on data sharing in the conduct of health-related citizen science, asking whether citizen scientists have obligations to share data and publish findings on par with the obligations of professional scientists. We conclude that there are good reasons for supporting citizen scientists in sharing data and publishing findings, and we applaud recent efforts to facilitate data sharing. At the same time, we believe it is problematic to treat data sharing and publication as ethical requirements for citizen scientists, especially where there is the potential for burden and harm without compensating benefit.
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DOI 10.1177/1073110520917044
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References found in this work BETA

Whose Commons? Data Protection as a Legal Limit of Open Science.Mark Phillips & Bartha M. Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (1):106-111.
Big Bad Data: Law, Public Health, and Biomedical Databases.Sharona Hoffman & Andy Podgurski - 2013 - Journal of Law, Medicine and Ethics 41 (s1):56-60.
Big Bad Data: Law, Public Health, and Biomedical Databases.Sharona Hoffman & Andy Podgurski - 2013 - Journal of Law, Medicine and Ethics 41 (s1):56-60.

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