Medicine, Health Care and Philosophy 18 (4):553-565 (2015)
AbstractDuring recent decades various researchers from health and social sciences have been debating what it means for a person to be disabled. A rather overlooked approach has developed alongside this debate, primarily inspired by the philosophical tradition called phenomenology. This paper develops a phenomenological model of disability by arguing for a different methodological and conceptual framework from that used by the existing phenomenological approach. The existing approach is developed from the phenomenology of illness, but the paper illustrates how the case of congenital disabilities, looking at the congenital disorder called cerebral palsy, presents a fundamental problem for the approach. In order to understand such congenital cases as CP, the experience of disability is described as being gradually different from, rather than a disruption of, the experience of being abled, and it is argued that the experience of disability is complex and dynamically influenced by both intrinsic and extrinsic factors. Different experiential aspects of disability— pre-reflective, attuned and reflective aspects—are described, demonstrating that the experience of disability comes in different degrees. Overall, this paper contributes to the debates about disability by further describing the personal aspects and experience of persons living with disabilities.
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References found in this work
Phenomenology of Perception.Maurice Merleau-Ponty - 1962 - Atlantic Highlands, New Jersey: The Humanities Press.
Citations of this work
Framing a Phenomenological Interview: What, Why and How.Simon Høffding & Kristian Martiny - 2016 - Phenomenology and the Cognitive Sciences 15 (4):539-564.
The Practice of Phenomenology: The Case of Max van Manen.Dan Zahavi - 2020 - Nursing Philosophy 21 (2).
The Ecological-Enactive Model of Disability: Why Disability Does Not Entail Pathological Embodiment.Juan Toro, Julian Kiverstein & Erik Rietveld - 2020 - Frontiers in Psychology 11.
Can we trust the phenomenological interview? Metaphysical, epistemological, and methodological objections.Simon Høffding, Kristian Martiny & Andreas Roepstorff - 2022 - Phenomenology and the Cognitive Sciences 21 (1):33-51.
Framing a Phenomenological Mixed Method: From Inspiration to Guidance.Kristian Moltke Martiny, Juan Toro & Simon Høffding - 2021 - Frontiers in Psychology 12.
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