Authors
Sean Aas
Georgetown University
Abstract
In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/1073110519840485
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 71,355
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

Research on Medical Records Without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Research on Medical Records Without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Oxford Essays in Jurisprudence.[author unknown] - 1961 - Philosophical Books 2 (3):3-4.

View all 8 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Who Owns the Data in a Clinical Trial?Jeffrey M. Drazen - 2002 - Science and Engineering Ethics 8 (3):407-411.
Donkey Demonstratives.Barbara Abbott - 2002 - Natural Language Semantics 10 (4):285-298.
Locke, Intellectual Property Rights, and the Information Commons.Herman T. Tavani - 2005 - Ethics and Information Technology 7 (2):87-97.
Tragedies Without Commons.Christopher Knapp - 2011 - Public Affairs Quarterly 25 (1):81-94.

Analytics

Added to PP index
2019-04-18

Total views
22 ( #515,686 of 2,519,622 )

Recent downloads (6 months)
3 ( #205,383 of 2,519,622 )

How can I increase my downloads?

Downloads

My notes