Who Owns the Data in a Medical Information Commons?

, , &
Journal of Law, Medicine and Ethics 47 (1):62-69 (2019)
  Copy   BIBTEX

Abstract

In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.

Categories

Keywords

Reprint years

DOI

10.1177/1073110519840485

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 91,219

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

My notes

Similar books and articles

Who owns the data in a clinical trial?Jeffrey M. Drazen - 2002 - Science and Engineering Ethics 8 (3):407-411.
The Withering Away of Property: The Rise of the Internet Information Commons.John Cahir - 2004 - Oxford Journal of Legal Studies 24 (4):619-641.
Genetische Informationen: Eigentumsansprüche und Verfügbarkeit.Michael Nagenborg & Mahha El-Faddagh - 2006 - International Review of Information Ethics 5:40-47.
What is a Medical Information Commons?Juli M. Bollinger, Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire & Robert Cook-Deegan - 2019 - Journal of Law, Medicine and Ethics 47 (1):41-50.
Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.Patricia A. Deverka, Dierdre Gilmore, Jennifer Richmond, Zachary Smith, Rikki Mangrum, Barbara A. Koenig, Robert Cook-Deegan, Angela G. Villanueva, Mary A. Majumder & Amy L. McGuire - 2019 - Journal of Law, Medicine and Ethics 47 (1):70-87.
Introduction: Sharing Data in a Medical Information Commons.Amy L. McGuire, Mary A. Majumder, Angela G. Villanueva, Jessica Bardill, Juli M. Bollinger, Eric Boerwinkle, Tania Bubela, Patricia A. Deverka, Barbara J. Evans, Nanibaa' A. Garrison, David Glazer, Melissa M. Goldstein, Henry T. Greely, Scott D. Kahn, Bartha M. Knoppers, Barbara A. Koenig, J. Mark Lambright, John E. Mattison, Christopher O'Donnell, Arti K. Rai, Laura L. Rodriguez, Tania Simoncelli, Sharon F. Terry, Adrian M. Thorogood, Michael S. Watson, John T. Wilbanks & Robert Cook-Deegan - 2019 - Journal of Law, Medicine and Ethics 47 (1):12-20.
Ethical and methodological aspects of medical computer data bases and knowledge bases.Jan Doroszewski - 1988 - Theoretical Medicine and Bioethics 9 (2).
The Role of Participants in a Medical Information Commons.Mary A. Majumder, Juli M. Bollinger, Angela G. Villanueva, Patricia A. Deverka & Barbara A. Koenig - 2019 - Journal of Law, Medicine and Ethics 47 (1):51-61.
Donkey Demonstratives.Barbara Abbott - 2002 - Natural Language Semantics 10 (4):285-298.
The Logic of Causal Inference: Econometrics and the Conditional Analysis of Causation.Kevin D. Hoover - 1990 - Economics and Philosophy 6 (2):207-234.
Locke, intellectual property rights, and the information commons.Herman T. Tavani - 2005 - Ethics and Information Technology 7 (2):87-97.
The requirements of the Data Protection Act 1998 for the processing of medical data.P. Boyd - 2003 - Journal of Medical Ethics 29 (1):34-35.
Internet-Based Commons of Intellectual Resources: An Exploration of their Variety.Paul B. de Laat - 2006 - In Jacques Berleur, Markku I. Nurminen & John Impagliazzo (eds.), IFIP; Social Informatics: An Information Society for All? In Remembrance of Rob Kling Vol 223. Springer.
Tragedies without Commons.Christopher Knapp - 2011 - Public Affairs Quarterly 25 (1):81-94.
Understanding Pharmaceutical Research Manipulation in the Context of Accounting Manipulation.Abigail Brown - 2013 - Journal of Law, Medicine and Ethics 41 (3):611-619.

Analytics

Added to PP
2019-04-18

Downloads
32 (#473,773)

6 months
9 (#250,037)

Historical graph of downloads
How can I increase my downloads?

Author Profiles

Citations of this work

Add more citations

References found in this work

The Tragedy of the Commons.Garrett Hardin - 1968 - Science 162 (3859):1243-1248.
Research on Medical Records without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Research on Medical Records Without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Theories and things: A brief study in prescriptive metaphysics.[author unknown] - 1961 - Philosophical Books 2 (3):8-10.

View all 8 references / Add more references