Who Owns the Data in a Medical Information Commons?

Journal of Law, Medicine and Ethics 47 (1):62-69 (2019)
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Abstract

In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.

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References found in this work

The Tragedy of the Commons.Garrett Hardin - 1968 - Science 162 (3859):1243-1248.
Research on Medical Records Without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Research on Medical Records without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
Theories and things: A brief study in prescriptive metaphysics.[author unknown] - 1961 - Philosophical Books 2 (3):8-10.

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