Parent–Child Roles in Decision Making About Medical Research
Ethics and Behavior 18 (2-3):161 – 181 (2008)
Abstract
Our objective is to understand how parents and children perceive their roles in decision making about research participation. Forty-five children (ages 4-15 years) with or without a chronic condition and 21 parents were the participants. A semistructured interview assessed perceptions of up to 4 hypothetical research scenarios with varying levels of risk, benefit, and complexity. Children were also administered the Peabody Picture Vocabulary Test, Third Edition, to assess verbal ability, as a proxy for the child's cognitive development. The audiotaped interviews were transcribed and analyzed for themes related to parent and child decision-making roles. Both parents and children varied in their perceptions of decision-making roles. Child perceptions of parental influence on decision making as knowledge-based increased with cognitive development, whereas perceptions of parental influence as power-based decreased. Both children and parents commented that they would collaborate with each other when making decisions. Collaborative decision making appeared to increase with cognitive development. These findings suggest that approaches to child assent and parent permission should consider the parent-child relationship and how children and families typically make decisions. Future research is necessary to explain variation in the process of research decision making across children and families, explore the role of collaboration on children's decision-making skills, and understand developmental trajectories and mechanisms related to research decision making.DOI
10.1080/10508420802063947
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Citations of this work
How do parents experience being asked to enter a child in a randomised controlled trial?Valerie Shilling & Bridget Young - 2009 - BMC Medical Ethics 10 (1):1-.
More Than “Just Don't Say No”: Taking Pediatric Decision Making Seriously.Mark D. Fox & Michael R. Gomez - 2018 - American Journal of Bioethics 18 (3):12-13.
PAeDS-MoRe: A framework for the development and review of research assent protocols involving children and adolescents.Marissa Constand, Nadia Tanel & Stephen E. Ryan - 2015 - Research Ethics 11 (1):15-38.
A Framework for Evaluating a Minor's Involvement in Medical Decision Making.Donna L. Snyder & Robert M. Nelson - 2018 - American Journal of Bioethics 18 (3):10-12.
References found in this work
Rethink "affirmative agreement," but abandon "assent".Steven Joffe - 2003 - American Journal of Bioethics 3 (4):9 – 11.
Children and Decisionmaking in Health Research.Françoise Baylis, Jocelyn Downie & Nuala Kenny - 1999 - IRB: Ethics & Human Research 21 (4):5.
Voluntary assent in biomedical research with adolescents: A comparison of parent and adolescent views.Janet L. Brody, David G. Scherer, Robert D. Annett & Melody Pearson-Bish - 2003 - Ethics and Behavior 13 (1):79 – 95.