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Research on Medical Records Without Informed Consent
Journal of Law, Medicine and Ethics 36 (3):560-566 (2008)
Abstract
Observational research involving access to personally identifiable data in medical records has often been conducted without informed consent, owing to practical barriers to soliciting consent and concerns about selection bias. Nevertheless, medical records research without informed consent appears to conflict with basic ethical norms relating to clinical research and personal privacy. This article analyzes the scope of these norms and provides an ethical justification for research using personally identifiable medical information without consentAuthor's Profile
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Citations of this work
Can RESEARCH and CARE Be Ethically Integrated?Emily A. Largent, Steven Joffe & Franklin G. Miller - 2011 - Hastings Center Report 41 (4):37-46.
Public interest in health data research: laying out the conceptual groundwork.Angela Ballantyne & G. Owen Schaefer - 2020 - Journal of Medical Ethics 46 (9):610-616.
In Defence of informed consent for health record research - why arguments from ‘easy rescue’, ‘no harm’ and ‘consent bias’ fail.Thomas Ploug - 2020 - BMC Medical Ethics 21 (1):1-13.
When and Why Is Research without Consent Permissible?Luke Gelinas, Alan Wertheimer & Franklin G. Miller - 2016 - Hastings Center Report 46 (2):35-43.
References found in this work
Principles of biomedical ethics.Tom L. Beauchamp - 1994 - New York: Oxford University Press. Edited by James F. Childress.
Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
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