Legitimacy, Trust and Stakeholder Engagement: Biobanking in South Africa

Asian Bioethics Review 9 (4):325-334 (2017)

Biobanking has become a global activity of growing relevance to research. The African continent is part of this global effort to collect, store and re-use samples and data. International research and capacity development efforts such as the Human Health and Heredity Africa project seek to empower African researchers and research participants alike. Given that African genetic diversity is a unique global resource, retaining samples and data on the continent is critical to building trust in communities who have been historically exploited in the name of research. Diverse and multiple stakeholders are involved in biobanking. Engaging authentically with these various stakeholder groups is a pre-requisite to building trust. Likewise, establishing legitimacy of biobanks also contributes to development of trust in communities. This paper reflects on the concepts of trust, legitimacy and stakeholder engagement. Empirical research conducted on researchers in South Africa as well as on research participants and Community Advisory Board members is briefly presented. The development of educational pamphlets on genetics, genomics and biobanking and an educational video on biobanking in conjunction with CAB members is described. These tools were used to engage research participants and CAB members in discussions around biobanking. Establishing biobanks in African settings is challenging. However, efforts must be made to engage with relevant stakeholders on the basis of mutual respect and trust.
Keywords Legitimacy   Trust   Stakeholder engagement   Biobanking   South Africa
Categories No categories specified
(categorize this paper)
DOI 10.1007/s41649-017-0035-7
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 41,636
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

View all 8 references / Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Three Elements of Stakeholder Legitimacy.Adele Santana - 2012 - Journal of Business Ethics 105 (2):257-265.


Added to PP index

Total views
2 ( #1,244,858 of 2,249,988 )

Recent downloads (6 months)
2 ( #794,873 of 2,249,988 )

How can I increase my downloads?


My notes

Sign in to use this feature