Journal of Medical Ethics 26 (3):160-165 (2000)
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Abstract |
The development of human genetics raises a wide range of important ethical questions for us all. The interpersonal dimension of genetic information in particular means that genetics also poses important challenges to the idea of patient-centredness and autonomy in medicine. How ought practical ethical decisions about the new genetics be made given that we appear, moreover, no longer to be able to appeal to unquestioned traditions and widely shared communitarian values? This paper argues that any coherent ethical approach to these questions must be able both to uphold the moral status of the individual and at the same time recognise the communitarian, interpersonal dimensions both of the world in which we live and of personal autonomy itself. The paper then goes on to propose an approach to the resolution of the ethical questions raised by the use of the new genetics in reproductive choice through the development of a coherent and principled process of public reason and justification oriented towards the support and development of personal autonomy
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DOI | 10.1136/jme.26.3.160 |
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References found in this work BETA
The Patient in the Family: An Ethics of Medicine and Families.Hilde Lindemann Nelson & James Lindemann Nelson - 1995 - Routledge.
The Social Contract: Or, Principles of Political Right.Jean-Jacques Rousseau - 1974 - New American Library.
Citations of this work BETA
Experiences with Community Engagement and Informed Consent in a Genetic Cohort Study of Severe Childhood Diseases in Kenya.V. M. Marsh, D. M. Kamuya, A. M. Mlamba, T. N. Williams & S. S. Molyneux - 2010 - BMC Medical Ethics 11 (1):13-13.
Consulting Communities on Feedback of Genetic Findings in International Health Research: Sharing Sickle Cell Disease and Carrier Information in Coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.
Communicating Genetic Information in the Family: The Familial Relationship as the Forgotten Factor.R. Gilbar - 2007 - Journal of Medical Ethics 33 (7):390-393.
Genetics and the Interpersonal Elaboration of Ethics.Michael Parker - 2001 - Theoretical Medicine and Bioethics 22 (5):451-459.
Shared Decision-Making, Gender and New Technologies.Kristin Zeiler - 2007 - Medicine, Health Care and Philosophy 10 (3):279-287.
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