In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74 (2019)

Abstract
Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. These emphasize increasing organizational flexibility, knowledge, and capacity, and reducing hazard.
Keywords Ethics of data donation  Practical uncertainty  Trust
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DOI 10.1007/978-3-030-04363-6_4
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References found in this work BETA

Principles of Biomedical Ethics.Tom L. Beauchamp - 1979 - Oxford University Press.
The Weirdest People in the World?Joseph Henrich, Steven J. Heine & Ara Norenzayan - 2010 - Behavioral and Brain Sciences 33 (2-3):61-83.
Risk, Uncertainty and Profit.Frank Knight - 1921 - University of Chicago Press.
Trust and Antitrust.Annette Baier - 1986 - Ethics 96 (2):231-260.

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