Vulnerable populations in research: The case of the seriously ill

Theoretical Medicine and Bioethics 27 (3):245-264 (2006)
  Copy   BIBTEX

Abstract

This paper advances a new criterion of a vulnerable population in research. According to this criterion, there are consent-based and fairness-based reasons for calling a group vulnerable. The criterion is then applied to the case of people with serious illnesses. It is argued that people with serious illnesses meet this criterion for reasons related to consent. Seriously ill people have a susceptibility to “enticing offers” that hold out the prospect of removing or alleviating illness, and this susceptibility reduces their ability to safeguard their own interests. This explains the inclusion of people with serious illnesses in the Belmont Report’s list of populations needing special protections, and supports the claim that vulnerability is the rule, rather than the exception, in biomedical research

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 93,642

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Analytics

Added to PP
2009-01-28

Downloads
79 (#72,876)

6 months
12 (#1,086,452)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Philip J. Nickel
Eindhoven University of Technology

References found in this work

Justice as fairness: a restatement.John Rawls (ed.) - 2001 - Cambridge, Mass.: Harvard University Press.
The Morality of Freedom.Joseph Raz - 1986 - Oxford, GB: Oxford University Press.
Autonomous Agents: From Self Control to Autonomy.Alfred R. Mele - 1995 - New York, US: Oxford University Press.
The morality of freedom.J. Raz - 1988 - Revue Philosophique de la France Et de l'Etranger 178 (1):108-109.
Collected papers.John Rawls - 1999 - Cambridge, Mass.: Harvard University Press. Edited by Samuel Richard Freeman.

View all 22 references / Add more references