Privacy and Equality in Diagnostic Genetic Testing

Nursing Ethics 14 (3):295-308 (2007)

Abstract
This study aimed to determine the extent to which the principles of privacy and equality were observed during diagnostic genetic testing according to views held by patients or child patients' parents (n = 106) and by staff (n = 162) from three Finnish university hospitals. The data were collected through a structured questionnaire and analysed using the SAS 8.1 statistical software. In general, the two principles were observed relatively satisfactorily in clinical practice. According to patients/parents, equality in the post-analytic phase and, according to staff, privacy in the pre-analytic phase, involved the greatest ethical problems. The two groups differed in their views concerning pre-analytic privacy. Although there were no major problems regarding the two principles, the differences between the testing phases require further clarification. To enhance privacy protection and equality, professionals need to be given more genetics/ethics training, and patients individual counselling by genetics units staff, giving more consideration to patients' world-view, the purpose of the test and the test result
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1177/0969733007075864
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

Our Archive


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 47,395
Through your library

References found in this work BETA

The Family Covenant and Genetic Testing.David J. Doukas & Jessica W. Berg - 2001 - American Journal of Bioethics 1 (3):2 – 10.
Confidentiality in Genetic Testing.Michael Parker - 2001 - American Journal of Bioethics 1 (3):21-22.
Ethical Considerations of Genetic Testing.David A. Fleming - 2002 - Journal of Clinical Ethics 13 (4):316.

Add more references

Citations of this work BETA

No citations found.

Add more citations

Similar books and articles

Analytics

Added to PP index
2013-11-02

Total views
31 ( #301,894 of 2,291,325 )

Recent downloads (6 months)
3 ( #398,154 of 2,291,325 )

How can I increase my downloads?

Downloads

My notes

Sign in to use this feature