Exploitation and community engagement: Can Community Advisory Boards successfully assume a role minimising exploitation in international research?
Developing World Bioethics 15 (1):18-26 (2015)
AbstractIt has been suggested that community advisory boards can play a role in minimising exploitation in international research. To get a better idea of what this requires and whether it might be achievable, the paper first describes core elements that we suggest must be in place for a CAB to reduce the potential for exploitation. The paper then examines a CAB established by the Shoklo Malaria Research Unit under conditions common in resource-poor settings – namely, where individuals join with a very limited understanding of disease and medical research and where an existing organisational structure is not relied upon to serve as the CAB. Using the Tak Province Border Community Ethics Advisory Board as a case study, we assess the extent to which it might be able to take on a role minimising exploitation were it to decide to do so. We investigate whether, after two years in operation, T-CAB is capable of assessing clinical trials for exploitative features and addressing those found to have them. The findings show that, although T-CAB members have gained knowledge and developed capacities that are foundational for one-day taking on a role to reduce exploitation, their ability to critically evaluate studies for the presence of exploitative elements has not yet been strongly demonstrated. In light of this example, we argue that CABs may not be able to perform such a role for a number of years after initial formation, making it an unsuitable responsibility for many short-term CABs
Similar books and articles
Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal K enya.Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux - 2013 - Developing World Bioethics 13 (1):10-20.
Community Members' Engagement with and Involvement in Genomic Research: Lessons to Learn from the Field.Morenike O. Folayan, Kolawole S. Oyedeji & Olawunmi A. Fatusi - 2015 - Developing World Bioethics 15 (1):1-7.
Protecting communities in health research from exploitation.Segun Gbadegesin & David Wendler - 2006 - Bioethics 20 (5):248-253.
Benefits to research subjects in international trials: Do they reduce exploitation or increase undue inducement?Angela Ballantyne - 2008 - Developing World Bioethics 8 (3):178-191.
Exploitations and their complications: The necessity of identifying the multiple forms of exploitation in pharmaceutical trials.Jeremy Snyder - 2012 - Bioethics 26 (5):251-258.
Working with Concepts: The Role of Community in International Collaborative Biomedical Research.V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux - 2011 - Public Health Ethics 4 (1):26-39.
Multiple Forms of Exploitation in International Research: The Need for Multiple Standards of Fairness.Jeremy Snyder - 2010 - American Journal of Bioethics 10 (6):40-41.
The injustice of exploitation.Vittorio Bufacchi - 2002 - Critical Review of International Social and Political Philosophy 5 (1):1-15.
Assuring adequate protections in international health research: A principled justification and practical recommendations for the role of community oversight.Sibusiso Sifunda David Buchanan, Shamagonam James Nasheen Naidoo & Priscilla Reddy - 2008 - Public Health Ethics 1 (3).
Off‐Shoring Clinical Research: Exploitation and the Reciprocity Constraint.Agomoni Ganguli Mitra - 2013 - Developing World Bioethics 13 (3):111-118.
‘Fair benefits’ accounts of exploitation require a normative principle of fairness: Response to Gbadegesin and Wendler, and Emanuel et al.Angela Ballantyne - 2008 - Bioethics 22 (4):239–244.
Equipose and international human-subjects research.Alex John London - 2001 - Bioethics 15 (4):312–332.
A qualitative study using traditional community assemblies to investigate community perspectives on informed consent and research participation in western Kenya.Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein - 2012 - BMC Medical Ethics 13 (1):23-.
Justifying Community Benefit Requirements in International Research.Robert C. Hughes - 2014 - Bioethics 28 (8):397-404.
Added to PP
Historical graph of downloads
Citations of this work
Solidarity and Community Engagement in Global Health Research.Bridget Pratt, Phaik Yeong Cheah & Vicki Marsh - 2020 - American Journal of Bioethics 20 (5):43-56.
Increased research literacy to facilitate community ownership of health research in low and middle income countries.Ruth G. St Fleur & Seth J. Schwartz - 2020 - Ethics and Behavior 30 (6):414-424.
Forming and implementing community advisory boards in low- and middle-income countries: a scoping review.Yang Zhao, Thomas Fitzpatrick, Bin Wan, Suzanne Day, Allison Mathews & Joseph D. Tucker - 2019 - BMC Medical Ethics 20 (1):1-11.
Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.Phaik Yeong Cheah, Nattapat Jatupornpimol, Borimas Hanboonkunupakarn, Napat Khirikoekkong, Podjanee Jittamala, Sasithon Pukrittayakamee, Nicholas P. J. Day, Michael Parker & Susan Bull - 2018 - BMC Medical Ethics 19 (1):86.
References found in this work
The Oxford Textbook of Clinical Research Ethics.Ezekiel J. Emanuel (ed.) - 2008 - Oxford University Press.
Philosophical justifications of informed consent in research.D. Brock, E. J. Emanuel, C. Grady, R. Lie, F. Miller & D. Wendler - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford Textbook of Clinical Research Ethics. Oxford University Press.
Responsibilities in international research: a new look revisited.S. R. Benatar & P. A. Singer - 2010 - Journal of Medical Ethics 36 (4):194-197.
Sharing the benefits of research fairly: two approaches.Joseph Millum - 2012 - Journal of Medical Ethics 38 (4):219-223.
Involving Study Populations in the Review of Genetic Research.Richard R. Sharp & Morris W. Foster - 2000 - Journal of Law, Medicine and Ethics 28 (1):41-51.