Mandatory versus voluntary consent for newborn screening?

Kennedy Institute of Ethics Journal 20 (4):299-328 (2010)
Virtually every infant in the United States (U.S.) undergoes a heel stick within the first week of life to test for a variety of metabolic, endocrine, and hematological conditions as part of state-run universal newborn screening (NBS) programs. In the U.S., NBS began in the 1960s for phenylketonuria (PKU), a metabolic condition that causes intellectual disability if left untreated. I review the history of how NBS came to be a mandatory public health program that did not require parental consent1 and examine whether the policy was morally justifiable. I then examine how three changes to NBS programs are prompting a re-evaluation of the mandatory nature of NBS. The three changes are: (1) the implementation of ..
Keywords No keywords specified (fix it)
Categories (categorize this paper)
 Save to my reading list
Follow the author(s)
Edit this record
My bibliography
Export citation
Find it on Scholar
Mark as duplicate
Request removal from index
Revision history
Download options
Our Archive

Upload a copy of this paper     Check publisher's policy     Papers currently archived: 29,848
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA
The Ethics of Krabbe Newborn Screening.R. H. Dees & J. M. Kwon - 2013 - Public Health Ethics 6 (1):114-128.

Add more citations

Similar books and articles
Toward a Realistic Assessment of PKU Screening.Diane B. Paul - 1994 - PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:322 - 328.
The Ethics of Krabbe Newborn Screening.R. H. Dees & J. M. Kwon - 2013 - Public Health Ethics 6 (1):114-128.
Parental Consent for Newborn Screening in Southern Taiwan.M.-C. Huang - 2005 - Journal of Medical Ethics 31 (11):621-624.
Predictive Genetic Testing for Conditions That Present in Childhood.Lainie Friedman Ross - 2002 - Kennedy Institute of Ethics Journal 12 (3):225-244.
Added to PP index

Total downloads
517 ( #3,924 of 2,210,428 )

Recent downloads (6 months)
8 ( #51,340 of 2,210,428 )

How can I increase my downloads?

Monthly downloads
My notes
Sign in to use this feature