Bioethics 30 (4):260-271 (2016)

Abstract
Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ought to receive? How can information be conveyed fairly about future, non-predictable lines of research? To circumvent these difficulties, some scholars have proposed that current consent guidelines should be reassessed, with trust being used as a guiding principle instead of information. Here, we analyse one of these proposals, based on a Participation Pact, which is already being offered to patients at the Istituto Europeo di Oncologia, a comprehensive cancer hospital in Milan, Italy
Keywords consent  research  pact  biobank  trust
Categories (categorize this paper)
DOI 10.1111/bioe.12184
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

PhilArchive copy


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 61,064
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

No references found.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles

Building on Relationships of Trust in Biobank Research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.
The Consent Problem Within DNA Biobanks.Darren Shickle - 2006 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 37 (3):503-519.
Broadening Consent--And Diluting Ethics?B. Hofmann - 2009 - Journal of Medical Ethics 35 (2):125-129.
Reconsidering Consent and Biobanking.Emma C. Bullock & Heather Widdows - 2011 - Biobanks and Tissue Research The International Library of Ethics, Law and Technology 8:111-125.
Biobanks--When is Re-Consent Necessary?K. S. Steinsbekk & B. Solberg - 2011 - Public Health Ethics 4 (3):236-250.
Why is Informed Consent Important?Rebecca Roache - 2014 - Journal of Medical Ethics 40 (7):435-436.
Using Informed Consent to Save Trust.Nir Eyal - 2014 - Journal of Medical Ethics 40 (7):437-444.

Analytics

Added to PP index
2015-08-26

Total views
14 ( #697,450 of 2,439,687 )

Recent downloads (6 months)
1 ( #432,499 of 2,439,687 )

How can I increase my downloads?

Downloads

My notes