The Obligation to Participate in Biomedical Research
Journal of the American Medical Association 302 (1):67-72 (2009)
Abstract
The current prevailing view is that participation in biomedical research is above and beyond the call of duty. While some commentators have offered reasons against this, we propose a novel public goods argument for an obligation to participate in biomedical research. Biomedical knowledge is a public good, available to any individual even if that individual does not contribute to it. Participation in research is a critical way to support an important public good. Consequently, all have a duty to participate. The current social norm is that individuals participate only if they have a good reason to do so. The public goods argument implies that individuals should participate unless they have a good reason not to. Such a shift would be of great aid to the progress of biomedical research, eventually making society significantly healthier and longer lived.Author Profiles
My notes
Similar books and articles
Participation in biomedical research is an imperfect moral duty: a response to John Harris.S. Shapshay & K. D. Pimple - 2007 - Journal of Medical Ethics 33 (7):414-417.
A Duty to Participate in Research: Does Social Context Matter?Inmaculada de Melo-Martín - 2008 - American Journal of Bioethics 8 (10):28-36.
A duty to participate in research: Does social context matter?Inmaculada de Melo-Mart - 2008 - American Journal of Bioethics 8 (10):28 – 36.
Free riders and pious sons – why science research remains obligatory.Sarah Chan & John Harris - 2009 - Bioethics 23 (3):161-171.
Non-human primates: the appropriate subjects of biomedical research?M. Quigley - 2007 - Journal of Medical Ethics 33 (11):655-658.
On the Alleged Right to Participate in High‐Risk Research.Joanna Różyńska - 2015 - Bioethics 29 (7):451-461.
Research, engagement and public bioethics: promoting socially robust science.M. D. Pickersgill - 2011 - Journal of Medical Ethics 37 (11):698-701.
Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining.Kieran C. O’Doherty & Michael M. Burgess - 2013 - Research Ethics 9 (2):55-77.
The Right to Withdraw from Research.G. Owen Schaefer & Alan Wertheimer - 2010 - Kennedy Institute of Ethics Journal 20 (4):329-352.
Decision‐making and motivation to participate in biomedical research in southwest nigeria.Nancy Kass Pauline E. Osamor - 2012 - Developing World Bioethics 12 (2):87-95.
Decision-making and motivation to participate in biomedical research in southwest nigeria.Pauline E. Osamor & Nancy Kass - 2012 - Developing World Bioethics 12 (2):87-95.
Four Paradigms of Clinical Research and Research Oversight.Ezekiel J. Emanuel & Christine Grady - 2007 - Cambridge Quarterly of Healthcare Ethics 16 (1):82-96.
Privatized Biomedical Research, Public Fears, and the Hazards of Government Regulation: Lessons from Stem Cell Research. [REVIEW]David B. Resnick - 1999 - Health Care Analysis 7 (3):273-287.
Analytics
Added to PP
2017-10-23
Downloads
259 (#47,628)
6 months
24 (#49,278)
2017-10-23
Downloads
259 (#47,628)
6 months
24 (#49,278)
Historical graph of downloads
Author Profiles
Citations of this work
The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.
An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics.Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):16-27.
The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):4-15.
The Ethics of Smart Pills and Self-Acting Devices: Autonomy, Truth-Telling, and Trust at the Dawn of Digital Medicine.Craig M. Klugman, Laura B. Dunn, Jack Schwartz & I. Glenn Cohen - 2018 - American Journal of Bioethics 18 (9):38-47.
Can RESEARCH and CARE Be Ethically Integrated?Emily A. Largent, Steven Joffe & Franklin G. Miller - 2011 - Hastings Center Report 41 (4):37-46.
References found in this work
In defense of the duty to participate in biomedical research.Rosamond Rhodes - 2008 - American Journal of Bioethics 8 (10):37 – 38.
A Duty to Participate in Research: Does Social Context Matter?Inmaculada de Melo-Martín - 2008 - American Journal of Bioethics 8 (10):28-36.
Making research a requirement of treatment: Why we should sometimes let doctors pressure patients to participate in research.David Orentlicher - 2005 - Hastings Center Report 35 (5):20-28.