In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag (2019)
| Abstract |
This chapter explores what we actually mean by data donation after death, and what different types of data donation metadata are involved in the process. It then provides an analysis of the ethical ramifications of each of these different types of data, outlines the concepts of data advance directives and data donation guardians as one way of dealing with these issues, and considers alternative governance mechanisms. The degree of control given to the first data donors may need to be high in order to maintain trust, but over time attitudes may evolve towards everyone giving “big consent” to data donation.
|
| Keywords | No keywords specified (fix it) |
| Categories |
No categories specified (categorize this paper) |
| Buy the book |
Find it on Amazon.com
|
| DOI | 10.1007/978-3-030-04363-6_10 |
| Options |
Mark as duplicate
Export citation
Request removal from index
|
Download options
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Enabling Posthumous Medical Data Donation: A Plea for the Ethical Utilisation of Personal Health Data.Luciano Floridi, Mariarosaria Taddeo & Jenny Krutzinna - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag.
Enabling Posthumous Medical Data Donation: An Appeal for the Ethical Utilisation of Personal Health Data.Jenny Krutzinna, Mariarosaria Taddeo & Luciano Floridi - 2019 - Science and Engineering Ethics 25 (5):1357-1387.
Wanted Dead or Alive: Organ Donation and Ethical Limitations on Surrogate Consent for Non-Competent Living Donors.A. Wrigley - 2013 - In A. Wrigley (ed.), Ethics, Law and Society, Vol. V. Ashgate. pp. 209-234.
Request for organ donation without donor registration: a qualitative study of the perspectives of bereaved relatives.Jack de Groot, Maria van Hoek, Cornelia Hoedemaekers, Andries Hoitsma, Hans Schilderman, Wim Smeets, Myrra Vernooij-Dassen & Evert van Leeuwen - 2016 - BMC Medical Ethics 17 (1):1.
The Consequences of Vagueness in Consent to Organ Donation.David M. Shaw - 2017 - Bioethics 31 (5):424-431.
The Ethics of Uncertainty for Data Subjects.Philip Nickel - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74.
Organ Procurement Organizations Internet Enrollment for Organ Donation: Abandoning Informed Consent.L. Verheijde Joseph, Y. Rady Mohamed, Woien Sandra & McGregor Joan - 2006 - BMC Medical Ethics 7 (1):14.
Increasing Organ Donation Rates by Revealing Recipient Details to Families of Potential Donors.David Shaw & Dale Gardiner - 2018 - Journal of Medical Ethics 44 (2):101-103.
Pre-Mortem Interventions for Donation After Circulatory Death and Overall Benefit: A Qualitative Study.Aisha Gathani, Greg Moorlock & Heather Draper - 2016 - Clinical Ethics 11 (4):149-158.
Organ Procurement Organizations Internet Enrollment for Organ Donation: Abandoning Informed Consent. [REVIEW]Sandra Woien, Mohamad Rady, Joseph Verheijde & Joan McGregor - 2006 - BMC Medical Ethics 7 (1):1-9.
Addressing Consent Issues in Donation After Circulatory Determination of Death.Kim J. Overby, Michael S. Weinstein & Autumn Fiester - 2015 - American Journal of Bioethics 15 (8):3-9.
The Ethics of Medical Data Donation.Jenny Krutzinna & Luciano Floridi (eds.) - 2019 - Springer International Publishing.
Exploring Families' Experiences of an Organ Donation Request After Brain Death.Z. S. Manzari, E. Mohammadi, A. Heydari, H. R. A. Sharbaf, M. J. M. Azizi & E. Khaleghi - 2012 - Nursing Ethics 19 (5):654-665.
Influencing Relatives to Respect Donor Autonomy: Should We Nudge Families to Consent to Organ Donation?Adnan Sharif & Greg Moorlock - 2018 - Bioethics 32 (3):155-163.
Improving the Organ Donor Card System in Switzerland.David Shaw - 2013 - Swiss Medical Weekly 143:w13835.
Analytics
Added to PP index
2020-02-07
Total views
0
Recent downloads (6 months)
0
2020-02-07
Total views
0
Recent downloads (6 months)
0
How can I increase my downloads?
Downloads
Sorry, there are not enough data points to plot this chart.
Sorry, there are not enough data points to plot this chart.
