“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark

Medicine, Health Care and Philosophy 21 (2):169-179 (2018)
  Copy   BIBTEX

Abstract

Trust features prominently in a number of policy documents that have been issued in recent years to facilitate data sharing and international collaboration in medical research. However, it often remains unclear what is meant by ‘trust’. By exploring a concrete international collaboration between Denmark and Pakistan, we develop a way of unpacking trust that shifts focus from what trust ‘is’ to what people invest in relationships and what references to trust do for them in these relationships. Based on interviews in both Pakistan and Denmark with people who provide blood samples and health data for the same laboratory, we find that when participants discuss trust they are trying to shape their relationship to researchers while simultaneously communicating important hopes, fears and expectations. The types of trust people talk about are never unconditional, but involve awareness of uncertainties and risks. There are different things at stake for people in different contexts, and therefore it is not the same to trust researchers in Pakistan as it is in Denmark, even when participants donate to the same laboratory. We conclude that casual references to ‘trust’ in policy documents risk glossing over important local differences and contribute to a de-politicization of basic inequalities in access to healthcare.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 92,923

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Building on relationships of trust in biobank research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.
Trust.Carolyn McLeod - 2020 - Stanford Encyclopedia of Philosophy.
Creating Trust.Robert C. Solomon - 1998 - Business Ethics Quarterly 8 (2):205-232.
Trust: self-interest and the common good.Marek Kohn - 2008 - New York: Oxford University Press.
Trust, Morality and International Business.George G. Brenkert - 1998 - Business Ethics Quarterly 8 (2):293-317.
Professional trust.Ian Frowe - 2005 - British Journal of Educational Studies 53 (1):34-53.
Trust it!D. Z. Phillips - 1999 - Bijdragen 60 (4):380-392.

Analytics

Added to PP
2017-09-06

Downloads
35 (#469,797)

6 months
9 (#354,585)

Historical graph of downloads
How can I increase my downloads?

References found in this work

Trust and antitrust.Annette Baier - 1986 - Ethics 96 (2):231-260.
Autonomy and Trust in Bioethics.Onora O'Neill - 2002 - New York: Cambridge University Press.
Deciding to trust, coming to believe.Richard Holton - 1994 - Australasian Journal of Philosophy 72 (1):63 – 76.
Trustworthiness.Karen Jones - 2012 - Ethics 123 (1):61-85.

View all 20 references / Add more references