Why Do People Participate in Epidemiological Research?

Journal of Bioethical Inquiry 12 (2):227-237 (2015)

Abstract
Many assumptions are made about public willingness to participate in epidemiological research, yet few empirical studies have been conducted to ascertain whether such assumptions are correct. Our qualitative study of the public and of expert stakeholders leads us to suggest that people are generally prepared to participate in epidemiological research, particularly if it is conducted by a trusted public institution such as a government health department, charity, or university. However, there is widespread community distrust of research conducted or sponsored by pharmaceutical companies. Individuals are prompted to take part if the study concerns an illness they or a family member or friend have personally experienced or if they believe the research will confer a widespread public benefit. Preferences vary about the mode of contact for the research to be conducted. Willingness to participate in telephone surveys has decreased in recent years, and this may be a consequence of an increase in calls to homes by telemarketers and market researchers. Participants also stressed the importance of knowing where their names and contact details were sourced and suggested that this information be available to prospective study participants as a matter of course in the first approach or letter. We provide valuable information to epidemiologists in designing studies
Keywords Research subjects/psychology  Public opinion  Patient participation  Epidemiologic research design  Motivation  Informed consent
Categories (categorize this paper)
ISBN(s)
DOI 10.1007/s11673-015-9611-2
Options
Edit this record
Mark as duplicate
Export citation
Find it on Scholar
Request removal from index
Revision history

Download options

Our Archive


Upload a copy of this paper     Check publisher's policy     Papers currently archived: 45,283
External links

Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library

References found in this work BETA

The Obligation to Participate in Biomedical Research.G. Owen Schaefer, Ezekiel J. Emanuel & Alan Wertheimer - 2009 - Journal of the American Medical Association 302 (1):67-72.

Add more references

Citations of this work BETA

Trust Me, I’M a Researcher!: The Role of Trust in Biomedical Research.Angeliki Kerasidou - 2017 - Medicine, Health Care and Philosophy 20 (1):43-50.

Add more citations

Similar books and articles

Analytics

Added to PP index
2015-02-15

Total views
16 ( #548,194 of 2,279,965 )

Recent downloads (6 months)
5 ( #237,298 of 2,279,965 )

How can I increase my downloads?

Downloads

My notes

Sign in to use this feature