Extending patient-centred communication to non-speaking intellectually disabled persons

Journal of Medical Ethics (forthcoming)
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Abstract

Patient-centred communication is widely regarded as a best practice in contemporary medical care, both in terms of maximising health outcomes and respecting persons. However, not all patients communicate in ways that are easily understood by clinicians and other healthcare professionals. This is especially so for patients with non-speaking intellectual disabilities. We argue that assumptions about intellectual disability—including those in diagnostic criteria, providers’ implicit attitudes and master narratives of disability—negatively affect communicative approaches towards intellectually disabled patients.Non-speakingintellectually disabled patients may also be taken to lack decision-making capacity and resultingly, may be given very little role in determining their care. But, given evidence of the heterogeneous communicative practices available to non-speaking patients, efforts should be made to extend patient-centred communication to them. We offer four suggestions for doing so: (1) treating those with non-speaking intellectual disabilities as potential communicators; (2) lengthening appointment times to develop relationships necessary for communication; (3) disentangling capacity from communication in concept and in practice; and (4) recognising the bidirectional connection between supported decision-making and patient-centred communication.

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Ally Smith
Seattle Pacific University
Ashley Feinsinger
University of California, Los Angeles

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Moving towards substituted or supported decision-making? Article 12 of the Convention on the Rights of Persons with Disabilities.Nandini Devi, Jerome Bickenbach & Gerold Stucki - 2011 - Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 5 (4):249-264.

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