Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study

Research Ethics 18 (3):193-209 (2022)
  Copy   BIBTEX

Abstract

Research Ethics, Volume 18, Issue 3, Page 193-209, July 2022. This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed consent from HIV infected individuals in Uganda for participation in pharmacogenetic clinical trials. The study explored two prominent themes: approaches used to convey information and enhance research participants’ understanding and challenges faced during the consenting process. Several barriers and facilitators for obtaining consent were identified. Innovative and potentially effective consenting strategies were identified in this study that should be studied and independently verified.

Links

PhilArchive



    Upload a copy of this work     Papers currently archived: 74,181

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

How Fair Is Fair?Lorraine Cuddeback-Gedeon - 2020 - The National Catholic Bioethics Quarterly 20 (2):251-262.

Analytics

Added to PP
2022-02-08

Downloads
3 (#1,305,525)

6 months
2 (#275,148)

Historical graph of downloads
How can I increase my downloads?

Author's Profile

Citations of this work

No citations found.

Add more citations