Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience [Book Review]

BMC Medical Ethics 13 (1):15-15 (2012)

Seeking consent for genetic and genomic research can be challenging, particularly in populations with low literacy levels, and in emergency situations. All of these factors were relevant to the MalariaGEN study of genetic factors influencing immune responses to malaria in northern rural Ghana. This study sought to identify issues arising in practice during the enrolment of paediatric cases with severe malaria and matched healthy controls into the MalariaGEN study
Keywords info:mesh/Malaria  Humans   Malaria   Focus Groups   Narration   Case-Control Studies   Health Knowledge, Attitudes, Practice   Genetic Research   Confounding Factors (Epidemiology)   Qualitative Research   Informed Consent   Rural Population   Ghana   Genome-Wide Association Study   Metagenomics  info:mesh/Informed Consent  info:mesh/Narration  info:mesh/Humans  info:mesh/Metagenomics  info:mesh/Ghana  info:mesh/Genetic Research  info:mesh/Genome-Wide Association Study  info:mesh/Case-Control Studies  info:mesh/Qualitative Research  info:mesh/Focus Groups  info:mesh/Rural Population  info:mesh/Health Knowledge, Attitudes, Practice  info:mesh/Confounding Factors (Epidemiology)
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DOI 10.1186/1472-6939-13-15
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Trust Me, I’M a Researcher!: The Role of Trust in Biomedical Research.Angeliki Kerasidou - 2017 - Medicine, Health Care and Philosophy 20 (1):43-50.

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